Narcolepsy Diagnosis
Narcolepsy & Exercise: Narcolepsy Awareness Video #17
As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms? My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you…
Read MoreTaking on Narcolepsy as a New Mom: Guest Post by Cherae Robinson
REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story…
Read MoreNarcolepsy Featured in The Pink Sheet Publication
I’m excited to share, “Narcolepsy Patients Hope FDA Attention Will Spur Drug Research, Shed Misperceptions” by Brenda Sandburg, The Pink Sheet, May 13, 2013. [View/Download PDF] This great article describes narcolepsy’s inclusion in FDA’s Patient Focused Drug Development Iniative. Thank you Ms. Sandburg and the Pink Sheet for featuring narcolepsy in your publication! For more posts about…
Read MoreJulie Flygare Featured on Dr. Don Show
On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr.…
Read MoreSchool Accommodations with Narcolepsy Video
My latest video describes accommodations for succeeding in school with narcolepsy. Watch below or on YouTube: Check back soon for more videos. Thank you to Alex Withrow for generously giving his time and pro filming skills to make this possible! Watch full video series Watch Video #19: Riding the Waves of Narcolepsy – Waterskiing with…
Read MoreNarcolepsy Isn’t Like the Movies: 16 Secret Signs of Daytime Sleepiness
We all know the punch line of the narcolepsy joke – person falls asleep while standing or in the middle of the conversation. My daytime sleepiness doesn’t look like this. On the surface, it doesn’t look like much of anything. Internally – my sleepiness aches. My limbs become heavy and pressure pushes on my skull.…
Read MoreNarcolepsy Videos Featured on EmpowHER
Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing visitors access to one of the largest women’s health and wellness content libraries on the web, as well as the largest online community of women discussing their…
Read MoreDr. Mignot Discusses Current State of Narcolepsy Research with NIH’s Dr. Twery
Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness! Thank you Dr. Twery, Dr. Mignot and NHLBI…
Read MoreWatch Video: TV Narcolepsy Interview with Julie Flygare on Forward Motion with Karen Allyn
Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
Read MoreDream Big Concert Benefitting Narcolepsy Awareness: Guest Blog Post by Kevin Gonzales
“I wanted to ensure her that I love her and would support her through anything.” -Kevin Gonzales REM Runner’s Note: This is a story of love. I was thrilled to learn about the Dream Big Concert and even more thrilled to hear Kevin and Megan’s journey toward creating this event. I asked Kevin to write a…
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