School Accommodations for Narcolepsy

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Navigating School with Narcolepsy: Key Takeaways from Project Sleep’s Toolkit

Living with narcolepsy in an educational setting can mean juggling daytime sleepiness, brain fog, medication, side effects, and in some cases, cataplexy. This post highlights lessons from Project Sleep’s Navigating School with Narcolepsy toolkit and connects you to other advocacy resources.

Understanding the Toolkit

The toolkit from Project Sleep was created to help students, families, clinicians, and educators navigate academic life with narcolepsy. It covers the legal framework (ADA and Section 504), how to document your diagnosis, sample accommodations, and advice for building an effective support team. 

Know Your Rights: ADA & Section 504

Narcolepsy can qualify as a disability under U.S. law if it substantially limits one or more major life activities, including sleeping. This protection allows students to request “reasonable accommodations” so they can access learning on equal terms. For families of high school students, this post on 504 Plan Tips for Parents explains how to initiate and negotiate a plan effectively.

Build an Advocacy Team Early

Form your team early: the student, parent or guardian, treating sleep specialist, and key school staff. Documentation should not only confirm the diagnosis but describe functional impacts and suggest accommodations. Also, I share practical language examples in Five Key Phrases for Health Advocates, which can also help in school settings.

Accommodations That Make a Difference

Project Sleep’s Navigating School with Narcolepsy Toolkit includes one of the most comprehensive lists of classroom, testing, and scheduling accommodations for students living with narcolepsy. The best accommodations are individualized—what helps one student may differ for another—but these are among the most commonly effective examples drawn directly from the toolkit:

📚 In-Class & Daily Learning

  • Seating near the front of the room or by a window for better alertness.
  • Freedom to stand, stretch, or take quiet movement breaks without drawing attention.
  • Permission to use fidget items, chew gum, or sip water to maintain alertness.
  • Copies of lecture notes, outlines, or slide decks to reduce pressure to take notes while fatigued.
  • Audio or video recording of lectures (with teacher consent) to replay material later when alert.
  • Access to natural lighting when possible; avoidance of dark or overly warm environments that promote drowsiness.
  • Alternate participation methods—typed or recorded answers instead of verbal responses on low-alert days.

🧮 Testing, Quizzes, and Assignments

  • Extended test time to account for attention lapses or brief naps.
  • Breaks during long exams to rest, stretch, or nap briefly if needed.
  • Testing at the time of day when the student is typically most alert.
  • Quiet, low-distraction testing environments or private testing rooms.
  • Alternate test formats (written, oral, project-based) if fatigue or cataplexy interfere with standard formats.
  • Flexible deadlines or make-up opportunities when symptoms interfere with completing work on time.
  • Access to technology aids such as speech-to-text software or keyboard use for essays.

🕒 Scheduling, Attendance & Workload

  • Priority registration to select classes at the most alert times of day.
  • Permission to schedule a nap period (20–30 minutes) during the school day in a safe, quiet location.
  • Reduced course load when medically necessary or during flare-ups.
  • Flexibility in attendance policies to allow recovery from severe sleepiness or cataplexy episodes.
  • Option to take online, hybrid, or asynchronous courses when in-person scheduling isn’t sustainable.
  • Coordinating longer breaks between classes to accommodate medications and naps.

💬 Communication & Safety Plans

  • Informing key staff (teachers, nurse, counselor) about narcolepsy and cataplexy so they recognize what’s happening if an episode occurs.
  • Identifying a safe space for the student to rest or recover during severe symptoms.
  • Establishing discreet signals or plans to excuse the student temporarily without embarrassment.
  • Providing written summaries after meetings or instructions to compensate for information missed due to drowsiness.
  • Encouraging peer or buddy note-sharing when possible.

For even more detailed examples—including sample letters for physicians and school administrators—see Project Sleep’s full Navigating School with Narcolepsy toolkit (pages 7–11).

Transitions: High School to College and Beyond

As the toolkit explains, the structure of support changes at each educational level. In college, accommodations are managed through disability services offices rather than individual teachers. Start early, bring updated documentation, and be ready to self-advocate. 

In addition to writing a narcolepsy memoir about my experience adapting to this serious neurological condition while in law school, the video below describes the accommodations that helped me get through law school as a student living with type 1 narcolepsy with cataplexy:

Self-Advocacy

Advocacy is a skill that grows over time. Explain narcolepsy in everyday language, note what works, and adapt your plan each school year. I love the quote from Kenya, a Project Sleep Jack and Julie Narcolepsy Scholarship recipient, “It’s okay to be delayed, just not denied.” 

 

“I can do anything, but I can’t do everything.”

This is another one of my favorite mantras. It’s likely true for everyone, but especially for students with narcolepsy or idiopathic hypersomnia (IH). In this video above, I share how I prioritize what’s most important to me to succeed as a person living with type 1 narcolepsy with cataplexy.

clipboard reads "i can do anything but i cant do everything."

Get the Full Toolkit

For sample language, doctor templates, and detailed explanations of educational rights, visit Project Sleep – Navigating School with Narcolepsy Toolkit Page

Further Resources

Attribution

This article draws upon Project Sleep’s Navigating School with Narcolepsy toolkit. Please visit Project Sleep for the full guide, templates, video and podcast resources.

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