Julie Flygare

Narcolepsy Quick Facts: [pdf]

Narcolepsy Infographic: [jpeg]

Frequently Asked Questions

10 Things You Didn't Know About Narcolepsy

Narcolepsy is Not Like the Movies: 16 Secret Signs of Excessive Daytime Sleepiness

Narcolepsy Research:

• Children's National Medical Center (Dr. Judith Owens - Washington, DC)
• Emory University Sleep Center (Dr. David Rye - Atlanta, GA)
• Harvard Medical School Systems Neurobiology Group (Dr. Thomas Scammell - Boston, MA)
• Montefiore Sleep-Wake Disorders Center (Dr. Michael Thorpy - Bronx, NY)
• Siegel Lab at UCLA (Dr. Jerome Siegel - North Hills, CA)
• Stanford University's Center for Narcolepsy (Dr. Emmanuel Mignot - Redwood City, CA)

Narcolepsy Organizations:

• Asociación Española de Narcolepsia (SPAIN)
• Assoc. Italiana Narcolettici (ITALY)
• L'A.N.C. (FRANCE)
• Narcolepsy Network (USA)
• Narcolepsy UK (UK)
• Nederlandse Vereniging voor Narcolepsie (NETHERLANDS)
• Project Sleep (USA)
• RareConnect Narcolepsy Community (International)
• SNaG Narkolepsie (SWITZERLAND)
• S.O.U.N.D. (IRELAND)
• Wake Up Narcolepsy (USA)

Narcolepsy Education & Advocacy Resources:

• School Accommodations for Narcolepsy — Practical tips and accommodations guidance from Project Sleep’s toolkit.

• Share Your Story: Rising Voices 
  A leadership training and storytelling initiative empowering people with sleep disorders to share their experiences and educate their communities.

• Narcolepsy Nerd Alert Series
  Educational series for people with narcolepsy and loved ones covering a variety of topics from from travel and work accommodations to treatment options and advocacy.

• World Narcolepsy Day
  Learn about the global awareness day uniting the narcolepsy community to increase understanding and awareness across the globe.

• Jack & Julie Narcolepsy Scholarship
  A national scholarship program to support students with narcolepsy and idiopathic hypersomnia while also fostering awareness in high school and college settings.

Author's Interviews: