Julie Flygare, JD is the President & CEO of Project Sleep, a leading narcolepsy advocate, speaker, published author, and Stanford Medicine X ePatient Scholar diagnosed with narcolepsy and cataplexy in 2007. She received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009.
Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students.
She is the author of "REM Runner" blog about running and living with narcolepsy. On April 19, 2010, Julie took on one of the greatest athletic challenges of her life, running the Boston Marathon. She has since run two more marathons, raising funds for the Jack & Julie Narcolepsy Scholarship.
Julie has spoken about narcolepsy internationally - to scientific researchers, doctors, nurses, medical students, NIH, FDA and CDC government officials and the general public. Her story has been featured by the Doctors Show, Marie Claire, Women's Health Magazine, ABC News, NBC, Sirius XM Radio and the Discovery Channel. (View Press)
In 2011, Julie established the first SLEEP WALK in Washington D.C. and received the National Public Awareness Award from Narcolepsy Network. In December 2012, she published Wide Awake and Dreaming: A Memoir of Narcolepsy, which won First Place in the 2013 San Francisco Book Festival Award for Biography/Autobiography.
In 2012 - 2013, Julie led efforts to successfully secure narcolepsy's place in FDA's Patient Focused Drug Development Initiative. From 2012-2015, she served on NIH's Sleep Disorder Research Advisory Board. Staying up-to-date on health technology trends, Julie has created the first-ever narcolepsy infographic along with the first-ever narcolepsy mobile app.
In 2014, Julie co-founded of the Jack & Julie Narcolepsy Scholarship - the first-ever scholarship for students with narcolepsy. That same year, she created the Narcolepsy: Not Alone international awareness campaign to prove that narcolepsy is REAL and that we are NOT ALONE, with over 1,500 photos from all 50 US States and 48 countries around the world.
In 2013, Julie founded Project Sleep, a 501(c)(3) non-profit dedicated to raising awareness about and advocating for sleep health and sleep disorders. In 2018, she assumed the role of President & CEO of Project Sleep, her dream job. She currently lives in Los Angeles, CA where she loves to run, play tennis and explore the secret staircases across the city.
Check out Project Sleep, the non-profit patient-driven sleep advocacy organization that Julie leads:
Narcolepsy is a neurological autoimmune sleep disorder in which the brain loses the ability to maintain normal sleep and wake states. Affects 1 in every 2,000 Americans (200,000-250,000 Americans). For more info: Narcolepsy Resources.
Check out Narcolepsy: Not Alone®:
Dr. Oliver Sacks and Jonah Lehrer
"You have been told that, even like a chain,
you are as weak as your weakest link.
This is but half the truth. You are also
as strong as your strongest link." -Kahlil Gibran
Julie's Greatest Dream:
For children with narcolepsy to stand tall and proud, knowing they're overcoming adversity and going to succeed in life.
- Julie Fain, MTV True Life
-Marcia (Founder, Dormez-Vous Studios)
Book Julie for your next event! Her story offers something for everyone.
"I found Julie's presentation to be spectacular."
- Dr. Harper, UCLA Medical School Professor
Past Speaking Engagements:
- Harvard Medical School
- APSS SLEEP Meeting 2013
- Social Media for Pharma Conference
- Narcolepsy Network
- Southern Sleep Society
- Children's National Medical Center - Narcolepsy in the Classroom Event
- Seminars in Brain and Behavior (Boston area neurologists and neuroscientists)
- Florida International University Medical School & Keynote Speaker of Undergraduate Diversity Day
- CROWN Summit Conference
- UCLA Medical School
- USC Neuroscience Interaxon
- Stanford Medicine X
I am a narcolepsy advocate, speaker, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Living in Los Angeles and serving as President & CEO of Project Sleep, I love opening people's hearts and minds to the real narcolepsy, a neurological disorder affecting 3 million people worldwide. Thanks for stopping by!