Narcolepsy Diagnosis
The Path to Narcolepsy Diagnosis: Julie Flygare Narcolepsy Awareness Video #21
I’m thrilled to release my 21st narcolepsy awareness video today, describing the path to a narcolepsy diagnosis. Watch below or on YouTube. Thank you so much for watching my video. Come back soon for more! A big thank you to Alex Withrow for his expert video production skils, you make me look good. 🙂 Watch…
Read MoreNarcolepsy Documentary in New Zealand
I’m so thrilled to share a recent narcolepsy documentary from New Zealand’s 3rd Degree show! The show follows two “Kiwis” (people from New Zealeand) living with narcolepsy and cataplexy. Watch here. One of my blog followers, Rhonda was featured in this great documentary. Rhonda explains, “I have had narcolepsy since I was a teenager and…
Read MoreNarcolepsy Infographic: What Is Narcolepsy?
I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: DOWNLOAD FILE Thank you to my amazing graphic designer, Anthony Nesossis. Thank you to Alex Withrow for his pro video production! Read about the making of the infographic here.…
Read MoreWhat To Say & NOT Say to Narcolepsy Patients
While speaking at SLEEP 2013, a doctor asked a great question: “Are there things I should or shouldn’t say to my narcolepsy patients?” The question caught me off-guard. It was so… thoughtful! Our panel provided some tips. Please add your suggestions in the comments below. What doctors should Say: Set reasonable expectations of working together long…
Read MoreA Narco’s Tale: A Poem by Maureen Caden
I was diagnosed in 2003 and like many of us went through many years with unanswered fears. I knew I was not lazy as some days became rather hazy. I would will myself to stay awake I didn’t even have time to bake a cake. For sleep time would come This thing had me under…
Read MoreJulie Flygare Publishes Huff Post Narcolepsy Article
Check out my Huff Post article, “Stanford’s Research Provides Hope for Patients With Narcolepsy.” This is a dream come true for me! Arianna Huffington’s commitment to sleep is a huge inspiration to me. Thank you to the Stanford Sleep Blog for sharing my story.
Read MoreMiss USA Contestant has Narcolepsy – Vote for Miss Louisiana Kristen Girault
Proud to be a person with narcolepsy today! Miss USA contestant – Miss Louisiana, Kristen Girault suffers from a mild case of narcolepsy. She spoke candidly about the challenges of narcolepsy with Inside Edition here. “My teachers used to throw erasers at me in class or complain that I was always falling asleep,” describes Kristen. “I promised that…
Read MoreLink between H1N1 flu and narcolepsy in children and adults: SLEEP 2013 Research Update Part I
At SLEEP 2013, I attended many fascinating sessions exploring the frontier of sleep science. I am not a scientist, but as a sleep and narcolepsy advocate, I will provide major takeaways from SLEEP 2013’s scientific program in upcoming blog posts. At the meeting, new data from Finland, France and China further suggested a link between…
Read MoreHello from SLEEP 2013!
This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients…
Read MoreMy Twisted Fairytale: A Poem by Shelby Stein
I feel like a princess locked in a tower. My Narcolepsy is my dragon guard. My weight loss is the lava moat that makes me cower more. My evil witch is merely my medicine, At first we didn’t see the harm, For it had a magic disguise to seem so beautiful. My poison apple of my…
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