Narcolepsy Diagnosis
Julie Flygare’s Interview on Sirius XM Radio – Listen Here!
Listen here for my SiriusXM Radio’s Broadminded Show interview. This morning, I arrived at the SiriusXM Radio studios at sun-rise. It was great to see the Broads again, Christine and Molly. We talked about my book, love life, National Sleep Awareness Week and the National Sleep Walk! I hope you enjoy the segment. Thank you for…
Read MoreThings I Love: PWNY Beads Dreamy Designs
“Passionate people embrace what they love and never let it go. Those who say it cannot be done should not interrupt those of us who are doing it.” -Julie Ann Funk, PWNY Beads Owner, Maker, Designer Chronic illness can be ugly. So when I discovered PWNY Beads jewelry & replacement Medical ID bracelets, I smiled long…
Read MoreBeing Your Own Health Advocate: Julie Flygare Narcolepsy Awareness Video 11
In this video, I reflect on coming to terms with daytime sleepiness and learning to speak up to my doctor. When symptoms and side effects are invisible, it’s crucial to communicate effectively with health professionals. Watch below or on YouTube. Thank you for watching and come back for more videos soon. A big thank you…
Read MoreNarcolepsy in the Classroom – Web Broadcast Event
Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C. LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from…
Read MoreHypnagogic Hallucinations & Sleep Paralysis: Julie Flygare Narcolepsy Awareness Video 10
I’m thrilled to release my latest video exploring hypnagogic hallucinations and sleep paralysis – two symptoms of narcolepsy. Thanks for watching, come back soon for more. Big thanks to Alex Withrow for giving his time and pro video production skills to make this possible! Watch All on YouTube Watch Video #9: Why I Wrote a…
Read MoreSleep’s Choice Published in Five Languages
My essay, Sleep’s Choice about excessive daytime sleepiness of narcolepsy is now published in FIVE languages: English, French, German, Spanish and Italian – on RareConnect.org! As I work towards raising awareness globally, this is a very proud day. Thank you to RareConnect and Robert Pleticha for making this possible! RareConnect is a partnership of EURORDIS and NORD – where rare…
Read MoreHow Do I Handle My Narcolepsy Diagnosis? Julie Flygare Narcolepsy Awareness Video 6
A reader asked me, “How do I handle my recent narcolepsy diagnosis?” I address this question here, in my 6th narcolepsy awareness video. Watch below (in 1080 HD for best quality) or on YouTube. Thank you for watching! More videos coming soon. Many thanks to Alex Withrow for his amazing video production. You made me glow…
Read MoreDiscovery Channel Narcolepsy Video
Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story. Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…
Read MoreNarcolepsy on Discovery Channel Featuring Julie Flygare
This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST). It was an honor to work…
Read More“Sleepwalk With Me” Movie Raises Awareness about Sleep Disorders
“Sleepwalk With Me” is a must-see movie for everyone, especially the 40 million Americans challenged by sleep. The film features a struggling comedian, who is driving cross-country for low-end gigs, while managing a rocky relationship and odd incidents of acting out his dreams at night. I’m a big fan of Mike Birbiglia, the writer, director, and star…
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