Narcolepsy
Happy Valentine’s Day from NARCOLEPSY: NOT ALONE!!
Happy Valentine’s Day to my narcolepsy friends across the USA and around the WORLD. Your love has lifted me up. Your support has given me courage. Your NARCOLEPSY: NOT ALONE photos have warmed my heart hundreds of times over. I’m forever grateful. Valentine’s Day can be a lot of fun, but it can also be…
Read MoreBack by Popular Demand – NARCOLEPSY: NOT ALONE t-shirts!
For 9 more days, NARCOLEPSY: NOT ALONE t-shirts are back on sale. T-shirts will arrive to you by Suddenly Sleepy Saturday, March 8, 2014, so we can wear them with pride on National Narcolepsy Day! International orders, please contact me directly at REMRunner01@gmail.com and I will help you fulfill the order myself. Thank you so much…
Read MorePregnancy with Narcolepsy: Guest Post by Natalie Kwadrans
REM Runner’s Note: Planning pregnancy with narcolepsy? I’m thrilled to share guest stories about pregnancy and parenting with narcolepsy. It’s such an important topic for many and personally, I think parents with narcolepsy are SUPERHEROES! Thank you, Natalie for sharing your experience and congratulations on being a new mom. Natalie’s Guest Post: My husband and…
Read MoreHarvard Medical School’s New Narcolepsy Website
I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety. I had the…
Read MoreRaising Narcolepsy Awareness at UCLA Medical School
Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient…
Read MoreIntroducing ‘The Sleep Diet A Novel Approach to Insomnia’ – Guest Post by Dr. Jose Colon
REM Runner’s Note: Dr. Colon is a diamond of a sleep doctor – he’s passionate about helping people. I’m proud to call Dr. Colon a friend and fellow sleep advocate. His new book is an exciting addition to the sleep community. Please join me in thanking him for his tireless efforts on behalf of sleepy…
Read MoreNARCOLEPSY: NOT ALONE t-shirt campaign a huge success!
On Feb. 10, 338 official NARCOLEPSY: NOT ALONE t-shirts will be delivered – raising awareness about narcolepsy in communities across the country. Please send photos of you wearing your shirts (narcolepsynotalone@gmail.com) for the gallery! In addition, over $4,000 was raised for Project Sleep, my new non-profit to promote sleep health and sleep disorders. Wow! Thank you from the…
Read MoreBugs, Sex, Lies & Homeless People: My Top Ten Cataplexy Triggers
Cataplexy is a fascinating symptom of narcolepsy – a sudden loss of muscle tone, without loss of consciousness, often triggered by emotions. I experience minor cataplexy daily – knees buckling, jaw slackening, eyes fluttering or hands trembling. With medication, my full-body attacks are once every couple weeks. It’s not always strong or positive emotions that cause my…
Read MoreNarcolepsy Lunch Break Webinar
Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD…
Read MoreOfficial NARCOLEPSY: NOT ALONE T-shirts!
The official NARCOLEPSY: NOT ALONE t-shirts are here! Raise awareness about narcolepsy while also supporting a good cause. Proceeds support Project Sleep, my new non-profit raising awareness about sleep health and sleep disorders. Purchase by Jan. 26, 2014. View/Order T-Shirts – Available in three styles: men’s/unisex, women’s fit and youth sizes – ONLY for sale…
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