Narcolepsy
2013 In Review & Dreams for 2014
Happy New Year! 2013 was an exciting BUSY year, I’m still catching my breath. 2013 in Review: “Wide Awake and Dreaming: A Memoir of Narcolepsy” won First Prize in San Francisco Book Festival’s Biography/Autobiography Contest and reached over 15,000 readers Narcolepsy Awareness Video Series now has 24 videos National Sleep Walk 2013 in Washington DC, Hawaii…
Read MoreNARCOLEPSY: NOT ALONE Reaches 50 States!
On New Year’s Eve, NARCOLEPSY: NOT ALONE reaches an exciting milestone – collecting photos from all 50 U.S. States! Thank you to Jamie and her mother for sending this photo from MONTANA today. Next time you meet someone who thinks narcolepsy is just a joke – you can tell them a little story about the 840…
Read MoreIntroducing the Jack & Julie Narcolepsy Scholarship
Today, I’m thrilled to unveil the Jack & Julie Narcolepsy Scholarship, the first-ever scholarship supporting students with narcolepsy while also raising awareness about narcolepsy in high school and collegiate settings. Beginning in 2014, one scholarship of $1,000 will be awarded to a high school senior who plans to attend a four-year university and exemplifies courage and…
Read MoreNARCOLEPSY: NOT ALONE Worldwide Update & Inviting My Hero, Ellen DeGeneres to Join Us!
Five months ago today, I launched the NARCOLEPSY: NOT ALONE campaign. I’m so excited to share this worldwide video update: Creating this video brought tears to my eyes – we had to stop filming momentarily so I could regain my composure. Thank you for standing tall and proud with me – helping to prove that…
Read MoreNarcolepsy is an Autoimmune Disorder
IMPORTANT UPDATE: Narcolepsy Finding Retracted but Autoimmune Theory and Epidemiological Association to Influenza/H1N1 Vaccine Remain Strong A recent study confirms that narcolepsy is an autoimmune disorder. Dr. Elizabeth Mellins and Dr. Emmanuel Mignot of Stanford University’s Center for Narcolepsy have discovered a specific group of “CD4+ T Cells” that target hypocretin and are only found…
Read MoreWide Awake and Dreaming: Celebrating One Year
One year ago, I published my memoir. I set out to change perceptions of narcolepsy and I believe my book is accomplishing that goal. There hasn’t been one defining moment when I knew writing this book was worth it. Instead it’s been a collection of quiet moments – emails, hugs, letters, tweets, and heart-felt “thanks…
Read MoreGive the Gift of Narcolepsy Awareness: Purchase Signed Books
This holiday season, I’m excited to offer personalized signed copies of “Wide Awake and Dreaming: A Memoir of Narcolepsy” for a discount rate of $15 a book (plus shipping). Order by Dec. 10 to ensure Christmas delivery Bulk discounts on orders of 10 books or more To place your order, contact me at REMRunner01@gmail.com In…
Read MoreI’m Not Looking to be Saved
“Can I ask you something personal?” I’d just told this older gentleman, a retired dentist and family friend, that I was writing a memoir about narcolepsy. When he wanted to ask me something personal, I nodded yes with enthusiasm – I enjoyed answering questions about my narcolepsy. “Are you religious?” he asked. “I consider myself…
Read MoreExpressions of my own ‘Narcolepsy with Cataplexy’: Guest Post by Solomon Briggs
Guest Post by Solomon Briggs: My name is Solomon Briggs and I have Narcolepsy with Cataplexy. I’ve recently self-published a book of illustrations, descriptions and factual information on this complex condition. It is exactly what the title is: Expressions of my own ‘Narcolepsy with Cataplexy’. As a child I could not raise my arms while being tickled,…
Read MoreDear Diagnosis Blogathon – Words to Live By
On Nov. 1, I kicked off the “Dear Diagnosis” Blogathon – inviting fellow narcolepsy and chronic disease bloggers to write a letter to themselves on their diagnosis day. So far, I’ve collected 47 inspiring, courageous and beautifully-written letters. (Read here.) In launching this blogathon, I had no grand expectations. I am blown away by the results.…
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