Why Advocate for Narcolepsy?

By julie | March 8, 2014 |

Happy Suddenly Sleepy Saturday! I created this infographic to explain why it’s so important we raise up our voices about narcolepsy: 75% of people with narcolepsy are undiagnosed and untreated Only 50% of adults believe narcolepsy can significantly impact overall health, despite serious nature of the disorder Only 70% of adults have heard of narcolepsy – the…

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10 Things You Didn’t Know About Narcolepsy

By julie | March 7, 2014 |

In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy:  10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious…

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Top 13 Inspirational Quotes of 2014 – #5 I Love Sleep

By julie | March 3, 2014 |

“I love sleep. My life has the tendency to fall apart when I’m awake, you know?”-Ernest Hemingway Happy Sleep Week! It’s National Sleep Awareness Week (March 2-9, 2014). This week, you can sleep in and wear your pajamas to work. Tell them I gave you permission!  😉 Inspirational Quote #6: Inspirational Quote #7: Inspirational Quote #8: Inspirational Quote…

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Top 13 Inspirational Quotes of 2014 – #6 Celebrating RARE

By julie | February 28, 2014 |

“We may be RARE, but we’ve got ROAR.”-Julie Flygare Yes, I’m (awkwardly) quoting myself today. Happy Rare Disease Day! The rare disease community is a huge source of inspiration to me. Many struggles I thought were “only narcolepsy”, are quite universal for rare disease patients.  We have difficulty finding proper diagnosis. We have limited treatment options, which…

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Top 13 Inspirational Quotes of 2014 – #8 Crazy Enough

By julie | February 25, 2014 |

“People who are crazy enough to think they can change the world, are the ones who do.”-Apple Computers Thank you to my dear friend, Sunny Dietra in Florida for sending me this quote! 😎 Inspirational Quote #9 Inspirational Quote #10 Inspirational Quote #11 Inspirational Quote #12 Inspirational Quote #13 Check back for more quotes soon!

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Join Julie for International Narcolepsy Broadcast on Suddenly Sleepy Saturday

By julie | February 24, 2014 |

Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below…

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Top 13 Inspirational Quotes of 2014 – #9 Being Perfect

By julie | February 22, 2014 |

“The thing that is really hardand really amazing, is giving up on being perfect and beginningto work on becoming yourself.”-Anna Quindlen Aw, how very true! We all strive for perfection at times. Yet, I try to focus my energy on developing my unique set of talents and skills – with compassion and without comparing myself to others.…

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Top 13 Inspirational Quotes of 2014 – #12 Carrying a Burden

By julie | February 19, 2014 |

 “You are not a burden. You HAVE a burden, which by definition, is too heavy to carry on your own.” Accepting help can be hard. Here’s how I created a strong support system. Come back soon for more inspirational quotes for those living with chronic invisible conditions like narcolepsy! Inspirational Quote #13:

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