Narcolepsy
Top 13 Inspirational Quotes of 2014 – #1 No Expiration Date
“Your dream doesn’t have an expiration date.Take a deep breath and try again.”-KT Witten About a year ago, one of my best friends, Gail added this quote (IN ALL CAPS) to her email signature. I smiled cause I love inspirational quotes. But then something odd happened – over the past year, I watched Gail make…
Read More“Women You Should Know” Features Narcolepsy Speaker/Author Julie Flygare
I’m so honored to be featured by Women You Should Know in today’s fantastic feature article “You Should Know Someone With Narcolepsy… Her Name Is Julie Flygare“. The article states: “When Women You Should Know first came to know of Julie, she was described as, ‘a dynamo Rock Star, who accomplishes everything she does with grace, humility, courage, and strength,…
Read MoreSleep Walk Jacksonville Shines Light on Sleep Health & Sleep Disorders – Guest Post by Dietra Mohrman
Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic Beach, FL. They registered and collected event t-shirts, wristbands, buttons and festive goodies. Attendees shared their amazing sleep spirit posters. As the local organizer and “Sleep Fairy” for…
Read MoreSchool Accommodations for Narcolepsy
For an updated overview and new guidance from Project Sleep’s toolkit, see my 2025 post: School Accommodations for Narcolepsy. I compiled this list directly quoting people with narcolepsy and their family members who reported on accommodations received for narcolepsy during education (from grade school to graduate school). I’ve broken the accommodations into categories. Every student…
Read MoreNarcolepsy 504 Plans for High School Students – Tips for Parents by Diana Brooks
REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed. Please note: If you’re preparing a 504 plan, you may also find my…
Read MoreTop 13 Inspirational Quotes of 2014 – #2 No Hope
“Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.” -Dale Carnegie For years, my book was a long-shot in the dark. I worked toward this goal without knowing if/when I would “succeed”. I faced skepticism and unforeseen…
Read MoreMy Time Makeover Begins
Living with narcolepsy, prioritizing my time is essential for success. Lately, I’ve been slipping from myself and my goals. Letting the priorities/needs/issues of others fill my days leaves me unable to care for myself. I can’t help others until I help myself. I must find better balance. I must learn to say no. “Take back…
Read MoreJulie Flygare Narcolepsy Speaker & Author Wins WEGO Health Activist Award 2014
Today, I won the WEGO Health’s Geek Health Activist Award 2014. Wow, what a huge honor! My fellow finalists are so inspiring, I felt lucky just to be included in this group. Although I’ve never considered myself a “geek”, I do love keeping up with technology and social media trends to help put narcolepsy on the…
Read MoreNARCOLEPSY: NOT ALONE Hits 1,000!
Today, the NARCOLEPSY: NOT ALONE campaign surpassed 1,000 photos. This stunning photo series highlights the SUPERSTARS of narcolepsy and their supporters in all 50 U.S. States and 37 countries around the world, proving narcolepsy is REAL and we are NOT ALONE! This campaign is changing lives. “Clayton didn’t want anyone knowing he had narcolepsy,” described his mother, Bethany.…
Read MoreWatch Now: International Narcolepsy Broadcast
Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!
Read More