Narcolepsy
Read the book with “not much info on anything” and “nothing to be learned by reading” it!
My book got it’s first one-star review on Amazon and I sort of LOVE it. Read below: I won’t use this forum to defend Wide Awake and Dreaming: A Memoir of Narcolepsy or bash this reviewer. Every reader is entitled to his or her opinion. It doesn’t interest me to persuade him/her/you differently. But…
Read MoreUnveiling New NARCOLEPSY: NOT ALONE Sleep Fairy T-shirt!
The NARCOLEPSY: NOT ALONE campaign is thrilled to unveil this beautiful new design by April-Scarlett Lee. Show your campaign pride while supporting a great cause. Order today: www.booster.com/NarcolepsyNotAlone Upon seeing April-Scarlett’s artistic contributions to the NARCOLEPSY: NOT ALONE campaign, I asked her if she would team up with me to create an official campaign design. She…
Read MoreJulie Flygare Speaks on Narcolepsy at USC
On April 22, 2014, I had the honor of speaking at USC to future med-students and neurologists. I was invited by the Neuroscience Interaxon group, an undergraduate outreach program that teaches elementary, middle, and high school students neuroscience lessons, in an effort to spark interest in the sciences for higher education. Most Interaxon members plan…
Read MoreMeet the Jack & Julie Narcolepsy Scholarship Award Recipients 2014
The Jack and Julie Narcolepsy Scholarship is delighted to announce that two recipients of the inaugural scholarship 2014 are Kendra Larrabee and Jacob Zeiher. We are thrilled to award both Kendra and Jacob a $1,000 scholarship toward their college education. The Jack & Julie Narcolepsy Scholarship is the first-ever scholarship supporting students with narcolepsy while also…
Read MoreNarcolepsy on ABC’s Modern Family
On Wednesday April 30, Modern Family’s episode was called Sleeper, in which the daughter has a biology project where she is given a disease to learn about. She walks in saying “Score! I get a disease that’s both rare and fun…narcolepsy!” She also describes it as an “escape for the brain”. Narcolepsy is a REAL…
Read MoreFive Key Phrases for Health Advocates
Living with a chronic or invisible illness like narcolepsy can be confusing and overwhelming. Here are the key phrases that have helped me survive and thrive in critical moments when I needed to advocate for myself and my health. I suggest adding these phrases to your vocabulary asap. #5. “Is there someone else I can speak with?”…
Read MoreNARCOLEPSY: NOT ALONE featured by NBC News in Alaska
NARCOLEPSY: NOT ALONE on the news? It’s true! NBC News Channel 2 KTUU in Alaska recently featured the campaign in a fantastic story about my friend and fellow advocate, Heather. WATCH HERE. Interestingly, the NARCOLEPSY: NOT ALONE campaign helped pave the way for this story. About a month ago, Heather worked hard to coordinate an amazing campaign…
Read MoreInspirational Speaking with Toastmasters
Toastmasters rocks! Just yesterday, I won Best Speaker for my inspirational presentation, “Recognizing Naysayers and Pursuing your Dreams”. Toastmasters International is a communication and leadership organization with clubs around the world. While I’ve always loved public speaking, Toastmasters is helping to quiet my nerves and improve my content and delivery. LOOKING FOR AN INSPIRING SPEAKER? Consider me for…
Read MoreFrom Dreams to Reality – Writing a Memoir of Narcolepsy
There are many comedic portrayals of narcolepsy in the media – “Mr. Bean”, “Deuce Bigalow Male Gigolo” and “Moulin Rouge” – these films feature characters with narcolepsy who fall asleep while standing and the audience gets a quick laugh. Yet as a law student diagnosed with narcolepsy at age 24, I’d never fallen asleep while standing.…
Read MoreSleep Health & Safety, Congressional Briefing April 10, 2014
On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak…
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