Narcolepsy
Join My Petition: Request Honda Remove Inaccurate Ad Stating People with Narcolepsy Shouldn’t Drive
Honda is “Fit For You” – Unless You Have NarcolepsyHonda Fit Ad Implies People with Narcolepsy are Not Fit to Drive As a leading narcolepsy spokesperson and award-winning author of “Wide Awake and Dreaming: A Memoir of Narcolepsy”, please join me in requesting that Honda please remove the “Synth and Seattleites” (http://youtu.be/rC-zopOGVOI ) advertisement promoting…
Read MoreNarcolepsy Article Accepted for Publication by American Journal of Medicine
I’m on PubMed! I’m thrilled to announce that the American Journal of Medicine accepted my article for publication, Flygare J, Parthasarathy S, Narcolepsy: Let the Patient’s Voice Awaken Us!, The American Journal of Medicine (2014), doi: 10.1016/j.amjmed.2014.05.037. I was honored to collaborate with Dr. Sai Parthasarathy, MD on this article. Dr. Parthasarathy is Associate Professor of Medicine…
Read MoreNarcolepsy Book Signing Event in New York City!
New York City, here I come! Please join me for a special Book Signing Event in NYC’s Central Park with the New York Narcoleptics Meetup Group on Sunday, July 13, 2014 from 12noon – 5pm! RSVP here. I will read a passage from Wide Awake and Dreaming: A Memoir of Narcolepsy and answer any questions…
Read MoreSleep took me hostage…
On Sunday, sleep took me hostage at the exact moment I was to leave to give a big speech at Toastmasters. I woke up with absolutely no time to prepare and ran out the door with Alex buttoning my blouse for me cause I didn’t even notice it wasn’t buttoned. Frantic, I drove 5 miles…
Read MoreNARCOLEPSY: NOT ALONE Visits the Dominican Republic
Last week, I traveled to the Dominican Republic on vacation with my boyfriend. Knowing the Dominican Republic was not yet included in the NARCOLEPSY: NOT ALONE campaign, I was SO excited to personally add the 38th country to our amazing international photo series. In a rush to pack, I forgot my NARCOLEPSY: NOT ALONE paper…
Read MoreUnveiling Project Sleep’s Logo & Introductory Video
As founder of Project Sleep, I’m thrilled to unveil our beautiful new logo in this introductory video: Thank you for celebrating this exciting step forward with Project Sleep! Our new website is on its way soon along with other announcements and events. A big thank you to Alex Withrow for his amazing photography and video production. Please…
Read MoreWhy NARCOLEPSY: NOT ALONE Matters…
Why NARCOLEPSY: NOT ALONE matters: “You have touched my daughter in a way I don’t believe I could ever to make her feel. To see her excitement passing out the bracelets, sharing that she has narcolepsy and cataplexy and she’s PROUD, it’s such a great change for her.” -Karen, Kenya’s Mom “I just got my shirt in…
Read MoreNarcolepsy on The Doctors Show
On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate,…
Read More“What is it like to have Narcolepsy?” Communication Tips
Narcolepsy is a neurological disorder of the sleep/wake cycle affecting 1 in every 2,000 people. As a person with narcolepsy, it can be overwhelming to explain the symptoms and affects on life. Typical Questions about Narcolepsy and Simple Answers: Provided by Julie Flygare’s Narcolepsy Mobile App – FREE download today! Q: What is narcolepsy?A: Narcolepsy is a neurological…
Read MoreNARCOLEPSY: NOT ALONE on NBC News in Chattanooga TN
NARCOLEPSY: NOT ALONE is on the news! I’m thrilled to share that NBC News Channel 3 WRCB in Chattanooga, TN featured the NNA campaign in a terrific segment with my friend and fellow advocate, Valencia Blake. WATCH HERE. The segment beautifully describes the NARCOLEPSY: NOT ALONE campaign as a nationwide effort to reach people with…
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