narcolepsy resources
Meet Owen, 11 Year Old Boy Living with Narcolepsy
Recently, I received a video from a mother of a young boy with narcolepsy. Warning: I cannot watch this video without crying. Brooke describes: “My 11-year-old son, Owen, was diagnosed with narcolepsy last spring. It was and is scary, and there just isn’t a lot of information out there, especially positive information! So you have…
Read MoreProject Sleep Awards 10 Scholarships to Students with Narcolepsy Entering College
While crossing the finish line of the San Diego Rock n Roll Marathon was an awesome moment, my biggest prize came yesterday when Project Sleep gave out TEN scholarships to students with narcolepsy through the Jack & Julie Narcolepsy Scholarship program. Meet the 2015 Jack & Julie Narcolepsy Scholarship Recipients: View Scholarship Awards Announcement View/Download…
Read MoreNarcolepsy Epidemic in Hollywood – Homer Simpson Latest Victim
It seems that Hollywood has a surprisingly large percentage of cases of narcolepsy, a disorder affecting 1 in 2,000 people, about 200,000 Americans and 3 million people worldwide, including many children and young adults. The latest Hollywood victim is Homer Simpson. Word on the street is he going to discover he has narcolepsy in the…
Read MoreYOU CAN AND YOU WILL (Marathon Part II)
As I crossed the start line of the San Diego Rock n Roll Marathon, runners started passing me. I laughed when a pack of Elvis(s) passed me. Typical. “Slow and steady. No one to beat. Nothing to prove,” I told myself. My shirt was drenched with sweat within 3 miles. Soon my hands raisined and…
Read MoreThe Final Countdown… REM Running a Marathon this Sunday!
On my final training run tonight, I got to thinking — last time I ran a marathon, I ended up writing a book about it. I wonder what the Rock n Roll San Diego Marathon has in store for me! So far, this marathon experience has been a wild ride. I started training in the midst of…
Read MoreNARCOLEPSY: NOT ALONE Runs Great Ocean Road Marathon in Australia
Just 9 days until my marathon and I’m super inspired by Louise, Jacob and their crew of 20 people who sported NARCOLEPSY: NOT ALONE for the Great Ocean Road Marathon in Australia last weekend. 12 runners wore the shirts (including 3 young doctors who have promised to spread the word amongst their peers!), and 8…
Read MoreRaising Narcolepsy Awareness at Nova Southeastern University
Grand Rounds is the important educational tradition of doctors and healthcare professionals getting together to learn about evolving areas which may be outside of their core practice. However, patients are rarely invited to participate, so sharing my narcolepsy journey at Nova Southeastern University (NSU)’s Grand Rounds on May 8, 2015 was a HUGE honor. This is why, just 24 hours…
Read MoreNarcolepsy Podcasts on SleepHub
During my recent visit to Australia, I got to meet Dr. David Cunnington, a sleep doctor in Melbourne. Last fall, I’d “met” Dr. Cunnington virtually when we were both interviewed on the Daily Edition TV program on narcolepsy. He’s one of those unique sleep doctors who is both knowledgeable about narcolepsy and truly CARES about his…
Read MoreVisiting Australia for the Narcolepsy Support Australia Conference
“What could I say that they don’t already know?” This question haunted me in the months, weeks and days leading up to Narcolepsy Support Australia Conference. Over a year ago, when NSG Australia’s leader-extraordinaire, Melissa asked me to be a keynote speaker at their inaugural patient conference, I said “Yes!!!” right away. No question, I wouldn’t miss…
Read MoreNarcolepsy Grand Rounds Speaker and CE Event Keynote at Nova Southeastern University
I leave for Australia in a few days, where I’ll be a keynote speaker at the Inaugural Narcolepsy Patient Conference hosted by NSG Australia. After returning from Australia, I’ll be taking off for Fort Lauderdale! I’ve been invited to speak at Nova Southeastern University on May 8th for their Grand Rounds and a Continuing Education (CE)…
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