Recently, I received a video from a mother of a young boy with narcolepsy. Warning: I cannot watch this video without crying.
“My 11-year-old son, Owen, was diagnosed with narcolepsy last spring. It was and is scary, and there just isn’t a lot of information out there, especially positive information! So you have given me so much hope and comfort. Thank you!
I wanted to share a little video I made about Owen a few months ago. He agreed to let me send it to his favorite band, Imagine Dragons, as they had sent out a request to hear people’s stories. Of course we didn’t hear back from Imagine Dragons because I’m sure they had a gazillions submissions. But the coolest part was that Owen let me send the video out to all his aunts and uncles and family members.
I look at the good you are doing by talking about narcolepsy and raising awareness, and look forward to Owen doing the same when he is ready.”
What a powerful yet graceful way of communicating about Owen’s journey. Owen and Brooke kindly agreed to sharing the video on my blog. Thank you for your bravery and strength. Please leave notes of encouragement for this young superhero below.
To all children and young adults with narcolepsy – you are overcoming invisible adversity daily and deserve to be very proud of yourself. Not everyone may understand, but I do and I’m cheering for you every day.
Tomorrow there’ll be so much to do
So tonight I’ll drift in a dream with you…
- Additional stories of children and young adults with narcolepsy
- Facebook Support Group for Parents of Children with Narcolepsy
- Facebook Support Group for Young Adults With Narcolepsy (YAWNs)
- Additional Narcolepsy Resources