Posts Tagged ‘narcolepsy memoir’
Julie Flygare Presents about Narcolepsy at Harvard Medical School
Last night, I practically skipped up the white marble stairs to Harvard Medical School. My neurologist met me inside one of the fancy marble buildings. We said hello quickly and ducked into the classroom. I recognized this classroom. I’d presented here four years ago with my neurologist. At the time, I was less than…
Read MoreHello, Beast.
“The only way to truly conquer something, as every great philosopher and geneticist will tell you, is to love it.” – Christopher McDoungall, Born to Run On Monday, I met the Beast while running up the steepest hill in my neighborhood 8 times in a row. As I started up the first…
Read MoreJulie Flygare Featured in ABC News Article about Narcolepsy with Cataplexy
I’m so honored to be featured in an ABC News article about narcolepsy and cataplexy! “Narcolepsy: Woman Fights to Stay Standing, Even on Dates” by Susan Donaldson James, ABC News April 4, 2012 I really enjoyed interviewing for this article – dating with narcolepsy isn’t something I’ve discussed much with the media, so my responses…
Read MoreLegs on Fire: Starting My Training for Mt Washington Road Race
Exciting update: I’ve received an official registration to run the Mt. Washington Road Race in my Father’s honor! The CEO of Northeast Delta Dental (the event sponsor) got word of my quest and contacted me to offer a complimentary registration. Turns out, a friend in the narcolepsy community tweeted about my quest and…
Read MoreFlygirl Takes On Flying Trapeze Despite Cataplexy
“Right hand on bar, toes over edge, left hand on bar… Left hand… Julie?” I am 23 feet above ground, on a small platform with the friendly trapeze man, Chad, pulling my harness/corset backward as I lean forward over the edge. Below – a net and a few miniature smiling faces. I’m supposed to…
Read MoreMemoir Milestones – Finishing My Book
After graduating from law school, I set out on a raft into the ocean… Or close enough, I set out to write a memoir. I wanted to open people’s hearts to narcolepsy. I’d studied the challenges facing people with narcolepsy while in law school – laws, regulations, policies, procedures, politics. I felt that a…
Read MorePeople Who Inspire Me: High School Students and Neuroscientists
Today, my inspiration comes from Boston and North Carolina. In Boston, a female neuroscientist, Nancy is training to run the Boston Marathon for Wake Up Narcolepsy. She researches sleep-disordered breathing, but she’s become aware of narcolepsy. Nancy states: “Patients are the reason we as scientists go to work every day… I have run a few marathons before,…
Read MoreIn My Father’s Footsteps: Trying to Find Registration for Mt Washington Road Race to run in my father’s honor on Father’s Day for charity
What do you do on Father’s Day the year your father dies? I’m 28 years old, and 40 years ago this Father’s day, my father was 28 years old, and he ran the Mount Washington Road Race. The Mount Washington Road Race is 7.6 miles uphill race to the summit of Mt. Washington climbing more than…
Read MoreClimbing onto the Tightrope
“Life should be lived on the edge of life. You have to exercise rebellion: to refuse to tape yourself to rules, to refuse your own success, to refuse to repeat yourself, to see every day, every year, every idea as a true challenge – and then you are going to live your life on a…
Read MoreSLEEP WALK 2012 Video
Yes, we got our groove on during SLEEP WALK 2012! Check it out: Thank you, Ethan Crawford for creating this awesome video! Thank you, Suzworks‘ Suzannah Weiss and Sue Dambrauskas for getting the party started with Nia. More fun videos here. More about Wake Up Narcolepsy here.
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