Posts Tagged ‘narcolepsy memoir’
When Dreams Come True – SLEEP WALK 2012
The week of SLEEP WALK 2012, I checked the weather obsessively like a bridezilla awaiting her wedding day. Hosting a “rain or shine” event outdoors in March is precarious. It could snow; it could be summer. Arriving at the National Mall early Saturday morning – the sun was shining brightly, not a cloud in…
Read MoreNews Alert: New York Times Features Narcolepsy
The New York Times has a wonderful article about narcolepsy, as told through a high school student’s experience with the disorder. This is great awareness during National Sleep Awareness Week! Read: Too Often, Doctors Overlook Narcolepsy by Jane E. Brody (New York Times, March 5, 2012)
Read MoreBring It On! We have Sleep Spirit – DO YOU?
Grab your glitter glue, bedazzlers, ribbons, and stickers – it’s time to make creative sleep/dream themed signage for the second annual SLEEP WALK (Saturday March 10, 2012 at 9am on the National Mall). My close friend and Nia instructor Sue hosted an informal sign-making party this past Sunday with myself, Sze-Ping and Kerry. It was…
Read MoreHappy Sleep Week!
I’m so excited National Sleep Awareness Week is here (March 4-11th)! In preparation, I attended two sleep-related events last week on behalf of Wake Up Narcolepsy (WUN). NSART:On Thursday, I represented WUN at the National Sleep Awareness Roundtable (NSART). This was my second year attending this meeting. NSART is a national coalition of government, professional, voluntary,…
Read MoreWill Do Yoga for Grilled Cheese: In Pursuit of Joy
I have two obsessions – yoga and grilled cheese. Maybe the two seem worlds apart, but for me, they serve the same purpose – JOY. At the beginning of each Tranquil Space yoga class, we are invited to set an intention. My intention is “to create JOY.” No matter how I feel, this…
Read MoreAs Orange As An Oompa Loompa
IF I turn as orange as an Oompa Loompa, blame it on sweet potatoes! It’s official, I’m in love with this vegetable. Sweet potatoes are one of the most nutritious AND delicious vegetables. The high levels of Vitamin A and beta-carotene are great for your skin. You can skip the super-expensive skin products at the pharmacy…
Read MoreSLEEP WALK 2012 Takes Big Footsteps Across America
Wow, the buzzzzz around the SLEEP WALK this year is exciting! We have nearly 90 participants from 14 states registered to attend the second annual SLEEP WALK 2012 in Washington DC, and I’m SO excited to announce that SLEEP WALK 2012 is traveling some 2,700 miles to Sacramento, CA! Full details here. If you…
Read MoreSLEEP WALK 2012 Gains International Attention: N is for Narcolepsy Blog
One of my all-time favorite narcolepsy blogs is “N is for Narcolepsy,” written by Ellie, a writer with narcolepsy living oversees. I’ve never met Ellie, but feel like we’re old friends from reading her informative beautifully-written blog the past couple years. I’m so excited to report that Ellie has featured our SLEEP WALK 2012 on…
Read MoreGuest Post on AASM’s Sleep Education Blog
I’m so excited to announce that the American Academy of Sleep Medicine invited me to write a guest post on their well-respected Sleep Education Blog. I wrote about my struggle to get a good night’s sleep and the upcoming SLEEP WALK! Please check out my post here.
Read MoreJuggling Clouds – Rediscovering Dance After My Father’s Death
Photography by Nia Technique “No one will die, Julie,” I repeated to myself on my way to Nia dance class this morning. Knots tightened in my stomach as I drove down the same roads in reverse from the fateful morning I’d received the call from my step-mom, Kathy. I hadn’t been back to Nia since. …
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