Posts Tagged ‘narcolepsy blog’
The View From Dreamworld
Did you know that the boundaries between dreaming and consciousness are broken down in the brains of people with narcolepsy? I experience my night dreams as real as reality. So during the day, I chase down my life dreams. Current dreams I’m chasing: the steepest road race in America and my memoir. Is it selfish…
Read MoreWomen’s Health Virginia Conference: Getting Good ZZZs: Vital Links Between Sleep & Wellness
On May 10th, 2012, Women’s Health Virginia will be holding a day-long conference about “Getting Good ZZZs: Vital Links Between Sleep and Wellness.” I would be REM-Running over to the University of Richmond for this conference, except I’ll be out of town that day sadly. Consider attending this conference to better understand: The…
Read MoreUnbelievable Broad For A Day – My Interview on Sirius XM Radio
“Am I dreaming?” I asked myself, walking into the Sirius XM Radio studios this morning. I peered into each soundproof spaceship-like studio with wide eyes. Today, I was a guest on the BROADMINDED show – the honor of a lifetime. Strangely, I wasn’t nervous. The Broads, Christine and Molly, are funny, friendly and down-to-earth. Besides…
Read MoreJulie Flygare on Sirius XM Radio
Spread the word! Tomorrow, Tuesday April 24, 2012 I will be interviewed LIVE on the BROADMINDED show – Sirius XM Radio Channel 107 at 8:20am. The BROADMINDED crew sound like so much fun! Show description: “The hilariously candid Broads of BROADMINDED – Christine Eads and Molly Dedham – invite you into their ever-evolving world of insecurities,…
Read MoreJulie Flygare’s Memoir Pitch at Pitchapalooza Featured by Georgetown Patch
Politics and Prose was buzzing with excitement and nerves on the night of Pitchapalooza. When I arrived right at 7pm, all the seats were taken, with people spilling into the various sections of the store to get a glimpse. In total, there were about 80 people in attendance. Twenty names would be…
Read MoreJulie Flygare Presents about Narcolepsy at Harvard Medical School
Last night, I practically skipped up the white marble stairs to Harvard Medical School. My neurologist met me inside one of the fancy marble buildings. We said hello quickly and ducked into the classroom. I recognized this classroom. I’d presented here four years ago with my neurologist. At the time, I was less than…
Read MoreHello, Beast.
“The only way to truly conquer something, as every great philosopher and geneticist will tell you, is to love it.” – Christopher McDoungall, Born to Run On Monday, I met the Beast while running up the steepest hill in my neighborhood 8 times in a row. As I started up the first…
Read MoreJulie Flygare Featured in ABC News Article about Narcolepsy with Cataplexy
I’m so honored to be featured in an ABC News article about narcolepsy and cataplexy! “Narcolepsy: Woman Fights to Stay Standing, Even on Dates” by Susan Donaldson James, ABC News April 4, 2012 I really enjoyed interviewing for this article – dating with narcolepsy isn’t something I’ve discussed much with the media, so my responses…
Read MoreLegs on Fire: Starting My Training for Mt Washington Road Race
Exciting update: I’ve received an official registration to run the Mt. Washington Road Race in my Father’s honor! The CEO of Northeast Delta Dental (the event sponsor) got word of my quest and contacted me to offer a complimentary registration. Turns out, a friend in the narcolepsy community tweeted about my quest and…
Read MoreFlygirl Takes On Flying Trapeze Despite Cataplexy
“Right hand on bar, toes over edge, left hand on bar… Left hand… Julie?” I am 23 feet above ground, on a small platform with the friendly trapeze man, Chad, pulling my harness/corset backward as I lean forward over the edge. Below – a net and a few miniature smiling faces. I’m supposed to…
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