Posts Tagged ‘narcolepsy blog’
Shining Light on Sleep: Julie Flygare Represents Narcolepsy at Congressional Briefing
Room S115 of the U.S. Capitol quickly filled to capacity on Thursday May 31st at 2pm. It was a packed house with standing room only for the Congressional Briefing on the NIH Sleep Disorders Research Plan. Congressional staffers, patient advocates and sleep researchers were all in attendance. The prestigous presenters outlined the significant health and…
Read More“The Moment I Knew I Needed More Sleep…” In Response to Arianna Huffington’s Post
Arianna Huffington is my hero. In a recent post, she shared the story of the moment she realized she needed more sleep and asked, “What was the moment you knew you needed to get more sleep? I want to hear your story.” Here’s mine: “The moment I knew I needed more sleep was when I woke up…
Read MoreJulie Flygare Gives Keynote Presentation to Southern Sleep Society
This spring, I was so honored to give the Keynote Presentation at the Southern Sleep Society’s 34th Annual Meeting’s Founders Awards Banquet in San Destin, FL. The Southern Sleep Society is the oldest regional sleep society in America. Their 34th Annual Meeting attracted over two hundred participants including sleep doctors, researchers and technicians. As a…
Read MoreThe Best & Worst of Climbing Mt Washington
There are many ways to climb Mount Washington. Let’s start with the best: #1. BY CAMEL:Meet Josh, the first Camel to reach the summit of Mt. Washington! On July 8, 2009, Josh and his entourage left the base at 3:00am to begin the 7.6-mile trek to the summit. Accompanying Josh were two horses named Kid and Mariah,…
Read MoreQuit It To Win It
I QUIT! In less than one mile. I felt more exhausted than after finishing the Boston Marathon. How could this be? I was scheduled for one of my hardest training workouts for MWRR, yet I was truly running on empty. Oddly, this was not an episode of EDS (excessive daytime sleepiness) associated with narcolepsy, I’d…
Read MoreThe Silver Lining
“The next time you encounter fear, consider yourself lucky.This is where the courage comes in. Usually we think that brave people have no fear. The truth is that they are intimate with fear.” -Pema Chödrön Today is one of my final hard training days before I take on “one of the most grueling road races in…
Read MoreSleep: A Health Imperative. Congressional Briefing on the 2011 NIH Sleep Disorders Research Plan
On May 31, 2012, a Congressional Briefing of the 2011 NIH Sleep Disorders Research Plan will take place at 2 p.m. in the U.S. Capitol Building. The Sleep Research Society in conjunction with Congressman Michael Honda organized this event. The Congressional Briefing is open to the public. Patients and interested parties are encouraged to attend. Details below. The…
Read MoreMarie Claire Magazine Narcolepsy Article Makes A Difference
On the path to narcolepsy diagnosis, there is an “A-ha!” moment when you find words that accurately describe your experiences. I remember mine perfectly. For one woman, Valentine Bernard, her A-ha! moment came last October at the grocery store: “Bernard had no idea what was wrong with her until she came upon the October 2011 issue of…
Read MoreHappy Mother’s Day from REM Runner
“Love me when I least deserve it, because that’s when I really need it.” -Swedish Proverb This Mother’s Day, I’d like to say thank you – first and foremost to my MOM! Many of my readers may not know that I was home-schooled for 7th & 8th grade. My mom has always been very active…
Read MoreHello, my name is NOT G.I. Jane.
“Don’t believe what your eyes are telling you.All they show is limitation. Look with your understanding, find out what you already know, and you’ll see the way to fly.” -Richard Bach “I don’t wanna run. I don’t wanna climb. I’m sick of fighting. I’m exhausted.” These thoughts cross my mind daily. I do not wake…
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