WATCH NOW: MedX 2015 Ignite! Talk by Narcolepsy Advocate, Julie Flygare

I’m thrilled to share my 5-minute Ignite! Talk from Stanford Medicine X 2015. Please share with friends and family to raise narcolepsy awareness (https://youtu.be/MXTd8xd_f8s). In this video, I describe my journey with narcolepsy from people laughing in my face to living proudly and creating the NARCOLEPSY: NOT ALONE campaign. I emphasize how feeling “misunderstood and alone” with…

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The Doctors Show Features My Story with Narcolepsy

Tune in to the Doctors TV Show this Monday Feb. 9, I’ll be sharing my journey with narcolepsy – including sleepiness, cataplexy, sleep paralysis and hypnagogic hallucinations . See full information here. Watch TV interview online:   Crafting an honest and accurate portrayal of narcolepsy with the Doctors TV Show was a lot of fun.  I was blown away…

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Guest on HuffPost Live: The Psychological Side of Illness

The psychological side of coping with narcolepsy is sometimes as challenging as the physical. I was thrilled to join HuffPost Live for an important discussion, “How To Manage The Psychological Side Of Illness” on Friday, Nov. 21, 2014. Watch below or here: Host Nancy Redd welcomed an inspiring panel of health advocates including yours truly, Juile Flygare (@REMRunner) Founder…

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Filming the Honda Narcolepsy PSA

Over the past few months, I’ve worked with Honda and a Honda agency, RPA, to create a narcolepsy public service announcement (PSA). I’m so proud and honored to have served as a real face and voice of narcolepsy for this project. In preparation, I shared my memoir, fact sheets, patient experience and key awareness points. It…

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Viral Narcolepsy with Cataplexy Video

A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on YouTube. This is a powerful video and I am grateful to Sarah Elizabeth for bravely sharing her experience! Sarah Elizabeth is primarily experiencing a narcolepsy symptom called cataplexy here. Cataplexy is a sudden loss of muscle tone, resulting in…

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Unveiling Project Sleep’s Logo & Introductory Video

As founder of Project Sleep, I’m thrilled to unveil our beautiful new logo in this introductory video: Thank you for celebrating this exciting step forward with Project Sleep! Our new website is on its way soon along with other announcements and events. A big thank you to Alex Withrow for his amazing photography and video production.  Please…

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10 Things You Didn’t Know About Narcolepsy

In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy:  10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious…

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Narcolepsy Lunch Break Webinar

Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET  Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD…

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Narcolepsy & Exercise: Narcolepsy Awareness Video #17

As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms?   My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you…

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