A few nights ago, I returned home from work exhausted and found a mysterious heavy package on my doorstep. Inside was a brand new copy of Narcolepsy: A Clinical Guide (2nd ed.), edited by Dr. Meeta Goswami, Dr. Michael Thorpy and S.R. Pandi-Perumal.
As a patient advocate, it was a HUGE honor to contribute the chapter “Succeeding in School and in the Workplace with Narcolepsy” to this narcolepsy book for health professionals. Seeing my name listed amongst such renowned narcolepsy specialists as the author of a chapter was so cool!
Opening this book to chapter 29, I smiled. I cried. I let my fingertips glide slowly over the words, soaking up this accomplishment. I know my dad would be so proud.
Drs. Goswami and Thorpy are renowned narcolepsy experts who I look up to so much, so I could hardly believe Dr. Thorpy’s amazing response to my chapter. He recently wrote: “I really enjoyed your chapter. I think it is one of the best assessment of school and work that I have seen. I have already quoted it in manuscripts that I have written.”
It was a lot of work to write this chapter as a person with narcolepsy. This style of writing doesn’t energize me. So it was a labor of love and determination to push through to the finish line. But I did it!
I hope this will help health professionals to better serve their patients with narcolepsy in pursuing school and work accommodations. Thank you for your continued support of my efforts.