narcolepsy memoir
Special Online Event: Presenting My Narcolepsy Story & Book Reading
Join me for a very special FREE ONLINE EVENT! This Sunday, May 10th at 8:00 p.m. EDT, tune in to Project Sleep’s Facebook Page to hear my inspiring narcolepsy presentation and to read a few favorite passages from my memoir. Full details about the broadcast. I’ve presented this around the world in Italy, Ireland, Sweden,…
Read MoreTaking a “Sick Day” with Narcolepsy
When working in traditional offices, I struggled with “sick days.” I didn’t often get colds or flus. I just dealt with my narcolepsy with cataplexy, which was fairly stable and “well-managed” by the time I took these jobs. Yet narcolepsy was still with me every day, to varying degrees — from minor annoyance to extreme…
Read MoreIt’s Almost World Narcolepsy Day, Are You Ready?
The week leading up to World Narcolepsy Day has quickly become one of the most surreal weeks of my life! I’m already speechless seeing the photos, articles, videos and radio segments from around the globe honoring World Narcolepsy Day. World Narcolepsy Day Activities: I will travel to Vancouver, Canada tomorrow to celebrate World Narcolepsy Day…
Read MoreListen: Julie Flygare on Present Not Perfect Podcast in honor of World Narcolepsy Day
Two people with narcolepsy. Double the insight! A few minutes into recording, I realized I’d never recorded a podcast with a fellow person with narcolepsy before. This interview with Leyla Sarper for the “Present Not Perfect” podcast was such a neat experience. I’m super excited to share this with you today! Listen now on Spotify here.…
Read More“Ode to Joy” Movie Review From A Person Living with Narcolepsy with Cataplexy
Today, the new feature film, Ode to Joy opens in select theaters (in New York and Los Angeles) and releases via video on demand across the United States. Ode to Joy is a movie about a man, Charlie (played by Martin Freeman) navigating romance while living with narcolepsy with cataplexy. I was not involved in the development…
Read MoreListen Now: CALM + COZY podcast interview
Apparently I felt comfortable and a bit snarky on the day that I recorded this CALM + COZY podcast interview with the amazing host, Beth Wyatt (@sleepcoachbeth on IG), because I’m pretty honest and animated here! Beth asked great questions that led to unique conversations not part of my usual “talking points” repertoire. My favorite discussion…
Read MoreSpeaking at Narcolepsy UK Conference 2019!
Honored to share the news that I’ll be a featured speaker at the Narcolepsy UK Annual Conference in Manchester on Sept. 7-8, 2019. I’m so excited to share my story at this event and meet people in the UK who already feel like old friends. Read Narcolepsy UK’s announcement and register today! I’ll never forget receiving the…
Read More5 Things You Might Not Know About Me – Drinking & Driving with Narcolepsy
Warning: you may NOT like this post, but here goes a 5 Things You Might Not Know About Me – including drinking & driving with narcolepsy (but not at the same time): 1. My car is named Delicious. There’s a minor character named Delicious in my fav Curb Your Enthusiasm episode and around that time…
Read MoreRepresenting Narcolepsy in Suffering the Silence Video & Photo Shoot
Hollywood’s portrayals of narcolepsy are notoriously inaccurate. For one day, the script was different, thanks to Suffering the Silence, AwesomenessTV and Visible. I was so proud to represent narcolepsy in this cool new video! Watch Video: Hello Hollywood! The morning of the Suffering the Silence filming and photo shoot, I arrived at the fancy AwesomenessTV studio in…
Read MoreReleasing the Audiobook of Wide Awake and Dreaming: A Memoir of Narcolepsy
Hello Audiobook! Today, I’m SO beyond thrilled to release the AUDIOBOOK for Wide Awake and Dreaming: A Memoir of Narcolepsy! Available now on Audible, Amazon and iTunes. Listen to a sample and download here (your first audiobook with Audible is always FREE!). Watch Preview Narrating is an Art Recording the audiobook is something I’ve been…
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