Narcolepsy in School
An Unforgettable Trip to Sweden to Speak about Narcolepsy
I recently returned from Sweden, where I was honored to be the keynote speaker at a narcolepsy event hosted by Narkolepsi Föreningen, an association for people affected by narcolepsy due to the Pandemrix vaccine against swine flu in 2009-2010 and their relatives. The retreat took place on May 11-13, 2018, but I traveled to Sweden a week early…
Read MoreYou’re Invited! Sharing My Inspiring Narcolepsy Presentation in Colorado
On Monday, April 9, 2018 from 5:30 PM to 7:30 PM (MDT), please join me at Children’s Hospital Colorado in Aurora, CO to hear my inspiring personal journey with narcolepsy presentation. People with sleep disorders, parents, siblings, spouses, friends, healthcare providers, educators, are ALL WELCOME, but please RSVP: https://www.eventbrite.com/e/family-narcolepsy-support-group-featuring-guest-speaker-julie-flygare-jd-tickets-42799959832 Hope to see you there and…
Read MoreSpeaking at the Sweet Dreams and Nightmares Sleep Symposium in Tallahassee
Last month, I had the honor of giving two presentations to allied health care professionals including physicians, nurse practitioners, respiratory therapists, social work experts, and sleep technologists at the Sweet Dreams & Nightmares Sleep Symposium presented by Tallahassee Memorial Healthcare and the Florida Medical Association. With the west coast to east coast time change, the…
Read MoreHow to Become a Narcolepsy Advocate? Apply Today for Rising Voices of Narcolepsy – Deadline Approaching
We all have a story to tell. Let’s get busy telling yours! I’m so excited to share the news that Project Sleep is now accepting applications for the Rising Voices of Narcolepsy leadership training program. However, the application deadline is quickly approaching in 9 days on February 24th, 2017 at 5:00pm PST, so please view summer 2017…
Read MoreNarcolepsy Advocate in Neurology Now Magazine
Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self Diagnose Successfully, on becoming an empowered and informed patient. I love Neurology Now magazine but narcolepsy isn’t included much, so I am thrilled to help raise some narcolepsy awareness with this neurology audience. Also, it’s super cool that my MedX friend, Matthew Might is…
Read MoreWhat is my secret? Am I a “typical” person with narcolepsy?
I received the following comment on my recent blog post and wanted to respond here. ************ Dear N. Leptic, Thank you for taking an interest in learning more about my experience with narcolepsy. First of all, I am so sorry to hear about your challenging experience with narcolepsy. It sounds like you are facing some very real and significant…
Read MoreNarcolepsy e-Patient Keynote to over 1,000 Healthcare Leaders at Health:Further Summit
I’m so honored to be a keynote speaker at Health:Further Summit in Nashville, TN on August 23-24, where I’ll join the stage with industry leaders to talk innovation and advanced solutions for the biggest issues facing healthcare. For this audience of healthcare executives and innovators, I’ll debut a new speech called, In Sickness or Health? Breaking Down Barriers…
Read MoreCaptain America’s Jeremy Renner wants Narcolepsy as his Superpower?
Recently, ‘Captain America: Civil War’ star, Jeremy Renner appeared on Live! with Kelly & Michael, stating, “I want to be Captain… Narcolepsy… I just want to nap whenever I want to nap.” Kelly adds, “My husband already beat you to it. We call it mark-olepsy.” [Everyone laughs…] Watch here (comment is at 6:45): My opinion: In reaction, I…
Read MoreWatch Now: New Video on Narcolepsy, Sleepiness & Invisible Illnesses
Recently, I was honored to join a group of rockstar advocates and innovators for a fantastic discussion and experimental filming exercise! Check out this awesome first video highlighting narcolepsy, sleepiness and invisible illnesses: When you get invited to an “experimental filming dinner party” in the Hollywood Hills where there’s no cellphone service, you may feel a little uncertain……
Read MoreMy best hallucination yet! A Visit from the Phantom Foot Massager
During lunchtime today, I went to my nap room at work, cuddled up into my lovely blanket from Ireland and quickly fell asleep. Next thing, I awoke to the most AMAZING foot massage!! Oh la la. My feet were sore from intense yoga classes over the weekend, so I really appreciated the free yummy foot massage from…. um…. my phantom foot…
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