Why Sleep Matters?
New York Times editor’s The Big Thing features Wide Awake & Dreaming: A Memoir of Narcolepsy
I’m SO honored that New York Times writer and editor, Phyllis Korkki features my story in her new book The Big Thing: How to Complete Your Creative Project Even If You’re a Lazy, Self-Doubting Procrastinator Like Me, published by Harper on August 9, 2016. Never in a million years did I imagine that Wide Awake and Dreaming would be featured…
Read More“I Have Narcolepsy. Do You?” on Sleep Success Summit
This Monday, August 8, my presentation, “I Have Narcolepsy. Do You?” will air to tens of thousands of online viewers as part of the Sleep Success Summit. Register for free today. The Sleep Success Summit is a free online event (August 8-15), featuring over 30 experts discussing a wide range of sleep health and sleep disorder topics. With tens of thousands of viewers expected…
Read MoreCaptain America’s Jeremy Renner wants Narcolepsy as his Superpower?
Recently, ‘Captain America: Civil War’ star, Jeremy Renner appeared on Live! with Kelly & Michael, stating, “I want to be Captain… Narcolepsy… I just want to nap whenever I want to nap.” Kelly adds, “My husband already beat you to it. We call it mark-olepsy.” [Everyone laughs…] Watch here (comment is at 6:45): My opinion: In reaction, I…
Read MoreWatch Now: New Video on Narcolepsy, Sleepiness & Invisible Illnesses
Recently, I was honored to join a group of rockstar advocates and innovators for a fantastic discussion and experimental filming exercise! Check out this awesome first video highlighting narcolepsy, sleepiness and invisible illnesses: When you get invited to an “experimental filming dinner party” in the Hollywood Hills where there’s no cellphone service, you may feel a little uncertain……
Read MoreA proud moment – publishing a chapter in narcolepsy clinical guide
A few nights ago, I returned home from work exhausted and found a mysterious heavy package on my doorstep. Inside was a brand new copy of Narcolepsy: A Clinical Guide (2nd ed.), edited by Dr. Meeta Goswami, Dr. Michael Thorpy and S.R. Pandi-Perumal. As a patient advocate, it was a HUGE honor to contribute the chapter…
Read MoreSleep in to speak out! Join Project Sleep’s SLEEP IN 2016 today.
On March 11-13, Project Sleep is taking to our beds for SLEEP IN 2016 to make PEACE with SLEEP during National Sleep Awareness Week! Challenge yourself to stay in bed for 12-48 hours over the weekend and join an international movement to raise awareness about sleep health and sleep disorders. Register today (it’s free): www.crowdrise.com/sleepin2016 With…
Read MoreDALLAS, will you SLEEP WALK with me?
I’m sooo excited to announce that I’ll be visiting Texas for SLEEP WALK DALLAS FORT WORTH on June 13, 2015. I can’t wait to raise sleep awareness with my DFW friends, plus I hear there’s face painting, prizes and a bounce house, so join us! IMPORTANT: Purchase t-shirt by Sunday, May 24th REGISTRATION: $5 in advance or at…
Read MoreCelebrate Sleep Week with Project Sleep’s SLEEP IN!
Happy Sleep Week, friends! This National Sleep Awareness Week, I can’t wait for Project Sleep’s first-ever international SLEEP IN (#SLEEPIN2015). On March 6-8, we will be taking to our beds to raise awareness about sleep health and sleep disorders while fundraising for Project Sleep. Let’s make PEACE with SLEEP! Sign up today: www.crowdrise.com/SLEEPIN Full details: www.project-sleep.com/sleepin I truly cannot…
Read MorePatients Included: Narcolepsy Patient Voice in American Journal of Medicine
The patient’s voice is rarely included in medical journals, but luckily, I love breaking down superficial barriers between patients and medical professionals. Check out: “Narcolepsy: Let the Patient’s Voice Awaken Us”, by Julie Flygare, JD and Sairam Parthasarathy, MD, (American Journal of Medicine, January 2015). I feel so lucky to have collaborated with Dr. Parthasarathy on this project, he’s a doctor…
Read MoreLaunching Project Sleep’s New Website
This week, we launched Project Sleep‘s new website! We’ve created a bright site to match our vision for a brighter future. This will be our launching pad to showcase and expand our efforts. A few fun pages to explore: “How I Am Curing My Sleep Disorder” Guest Post by Stacy Simera Host a NARCOLEPSY: NOT ALONE event! SLEEP WALK TAMPA…
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