Project Sleep
Preparing TED-style Talk for “Radical Thinkers”
On Sept. 11, 2014, I will present a TED-style talk at “Disruptive Innovations” in Boston, MA. My 12-minute speech will discuss: “How a Patient Helped Define a New Clinical Endpoint in Narcolepsy: Diagnosed with narcolepsy with cataplexy in 2007, award-winning author and founder of Project Sleep, Julie Flygare, shares her story on how she helped define a…
Read MorePatient Advocacy at Public Relations & Communications Summit 2014
After my book-signing event in NYC, I shared my patient leader perspective at the Public Relations and Communications Summit in New Jersey on July 14, 2014. Our patient panel was led by Bob Brooks of WEGO Health and I was honored to share the stage with Michael Fernandez, an inspiring award-winning Migraine Health Activist and author of migrainediscussions.com. While…
Read MoreJoin Us! Sleep Walk Tampa Bay
In one month, on Sunday August 31, 2014, we will be walking on the beach to celebrate sleep in St. Pete Beach, FL! Please join myself and local host, Jessica starting at 9:00 a.m. for a 1.5 mile scenic beach walk and sleep spirit contest. Order event t-shirts by August 12, 2014. Join Project Sleep to celebrate…
Read MoreProject Sleep is officially a 501c3 non-profit!
Project Sleep is officially a 501(c)(3) tax exempt non-profit organization – which means that all generous donations are now tax-deductible! My heart jumped out of my chest when I received the news. I read the official IRS determination letter about 20 times to make sure I wasn’t dreaming. I could hardly believe it, my long-time…
Read MoreHonda will create narcolepsy PSA with community
EXCITING UPDATE: Honda will create a 30-second Narcolepsy Awareness Public Service Announcement (PSA). I am beyond honored to serve as the spokesperson/talent in PSA and I’m currently working with Honda’s ad agency to develop the content. This is an incredible turn-of-events in our inspiring community initiative thanks to each and every person who signed the petition and raised your voice. Big thanks to…
Read MoreNARCOLEPSY: NOT ALONE in UK Newspaper featuring April Scarlett Lee’s story & artwork
“Despite dealing with the nightmares caused by her condition, April Scarlett Lee’s cartoons have gone global as part of Project Sleep!” April-Scarlett Lee’s narcolepsy journey and the NARCOLEPSY: NOT ALONE campaign are featured in the news this week! Read “Tackling Narcolepsy” by Lydia Johnson, Worcester News, July 7, 2014 [PDF]. I’m so proud to call…
Read MoreUnveiling Project Sleep’s Logo & Introductory Video
As founder of Project Sleep, I’m thrilled to unveil our beautiful new logo in this introductory video: Thank you for celebrating this exciting step forward with Project Sleep! Our new website is on its way soon along with other announcements and events. A big thank you to Alex Withrow for his amazing photography and video production. Please…
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