Preparing TED-style Talk for “Radical Thinkers”

Disruptive Innovations Conference Speaker Julie Flygare Inspiring Narcolepsy Speaker Author Project Sleep Founder Narcolepsy Nonprofit organization health advocate leaderOn Sept. 11, 2014, I will present a TED-style talk at “Disruptive Innovations” in Boston, MA.  My 12-minute speech will discuss: How a Patient Helped Define a New Clinical Endpoint in Narcolepsy: Diagnosed with narcolepsy with cataplexy in 2007, award-winning author and founder of Project Sleep, Julie Flygare, shares her story on how she helped define a clinical endpoint with the FDA and what this can mean for the future of the drug developed.”

I LOVE the conference description:

“This is the only conference truly dedicated to exploring and addressing where there is significant innovation in clinical trials. Radical Thinkers are Especially Welcomed.

We bring together an exceptional audience of out-of-the-box thinkers determined to make clinical trials more affordable, efficient, with higher quality data and a far better experience for patients. This conference is designed to be engaging in a highly informative format, similar to the style of TED events.”

I began preparing my speech last weekend, but have a long way to go. I’ll present a first draft version this weekend for my Toastmasters club. From there,  I’ll be revising and rehearsing like mad until September 11th.

Oddly, many different parts of my life seem to be coming together in one speech – my FDA efforts, legal background, passion for persuasive speaking and love of creative non-fiction. I hope to weave it all together into a magical 12-minute masterpiece.

I’m honored to showcase the narcolepsy community’s FDA Initiative and advocate for greater patient representation in clinical research development. I hope to make you proud!

UPDATE: Watch my full speech here:

Watch my interview on narcolepsy, FDA & Project Sleep:

Download my Speaker’s Resume

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  • Current Concepts in Sleep in St Pete Beach, FL (Aug. 29-30, 2014)
  • Narcolepsy Support Australia Patient Conference in Queensland, Australia (May 1-3, 2015)
  • Nova Southeastern College of Medicine and Health Professions Division in Ft. Lauderdale, FL (May 7-9, 2015)


  1. Rebecca on August 7, 2014 at 6:06 pm

    This is thrilling Julie! Good luck as you rehearse what I know will be an
    eloquent and inspiring talk. Any chance I could sneak in?

  2. Melanie on August 8, 2014 at 1:44 am

    Julie, I am sure your speech will be amazing! Good luck 🙂

  3. Beth on August 11, 2014 at 6:35 pm

    Dear Julie
    I read a recent blog article(?) that you wrote discussing people’s reaction to your narcolepsy and wanting to somehow “fix” you with prayer or yoga or whatever.
    I really appreciated your response and your comments about living in a culture that is uncomfortable with struggle or difficulty of any kind. I think you are courageous and resourceful in dealing with your particular struggle. I wanted to give you a resource about living whole-heartedly that I recently saw on It is Brene Brown speaking about vulnerability and shame issues. I think you might enjoy it.
    I do pray and I do believe there is someone greater than us who designed us and loves us like an artist loves his creative work. But I don’t want to “fix” you and give you any easy answers. I think you are beautiful just the way you are. Keep on doing what you were made for!!

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