Narcolepsy
SAY IT LOUD: I’m a Person with Narcolepsy and I’m Proud!
“I really don’t care what people think…I just do my own thing… I like being loud and letting people know I’m here.” -James Brown We should all do our own thing and not care what others think, but easier said than done. How do we ignore judgement? How do we celebrate the things,…
Read MoreABC WTVD Reports on Narcolepsy and AVALON Magazine to Raleigh, NC Area
ABC WTVD Channel 11 in Raleigh, NC aired an in-depth report about narcolepsy today at 4pm. The news story featured my personal hero, Haven, and the articles I authored recently published in AVALON Magazine. Watch here. For more, check out AVALON Magazine’s Holiday Dream Issue for sale onlineand at bookstores including Barnes & Nobles, Books-A-Million, Doubleday,…
Read MoreNarcolepsy in the News
More narcolepsy in the news? It’s true. This Thursday, Nov 17th at 4pm, ABC WTVD Channel 11 in Raleigh, NC area will feature a very special report about my personal hero, Haven! Haven is an amazing young woman, age 10, living with narcolepsy and cataplexy. Her story is featured on my blog here and…
Read MoreNBC Washington Features Julie Flygare in Narcolepsy Report
Just 15 minutes into the 5 o’clock news today, NBC Washington featured an in-depth report about my experience with narcolepsy and cataplexy. Please share to help raise awareness! Watch here: View more videos at: http://nbcwashington.com. Description:“Julie Flygare had the world in the palm of her hand. She was in law school, she was an avid…
Read MoreReview: MTV True Life I Have Narcolepsy Shines Bright Light on Narcolepsy and Cataplexy
I turned on my TV and cataplexy starred back at me. I smiled. The program information for MTV’s True Life “I Have Narcolepsy” described: Two young women, Julie and Katie, discuss in detail the challenges they have had to endure after being diagnosed with cases of Narcolepsy, which causes extreme sleepiness, and Cataplexy, which causes sudden…
Read MoreREM Runner Julie Flygare Receives National Public Awareness Award
While in Las Vegas for the Narcolepsy Network Conference, I was awarded the “Public Awareness Award” 2011 from this national narcolepsy organization on October 15, 2011. I’m incredibly honored to receive this award. Raising awareness about narcolepsy is a joy and privilege. I look forward to continuing my advocacy work in years to come.…
Read MoreREM Runner Visits U.S. Supreme Court for Case involving Woman with Narcolepsy
The Court:Single-file, we entered the courtroom as strangers and sat together on a long wooden bench. The nine leather chairs at the front of the room were vacant. This past Wednesday, I had the extraordinary opportunity to visit the Supreme Court of the United States to hear oral arguments in a case involving a woman…
Read MoreMarie Claire Narcolepsy Article Featuring Julie Flygare Available Online
Marie Claire Magazine’s narcolepsy feature, “Eyes Wide Shut,” by Julie Flygare as told to Sophia Banay Moura, is now online at: www.marieclaire.com/health-fitness/news/narcolepsy-disorder (October 2011). Please spread the word: “Like” it, “Tweet” it, and Share via Facebook and Email. With 40 million Americans living with chronic sleep disorders – a few undiagnosed folks may read this and…
Read MoreMarie Claire October 2011 Magazine Features REM Runner, Julie Flygare, in Narcolepsy Article
I am thrilled that this month’s Marie Claire magazine (October 2011 with Reese Witherspoon on the cover) features a two-page health article about my journey with narcolepsy called, “Eyes Wide Shut.“ MC’s Senior Editor contacted me last summer about the possibility. We interviewed for 6 hours over three days. She asked lots of questions and listened…
Read MoreFaulty Lines
At first, it was a patter-patter. Then a trembling. Finally, a full-out shake-n-shatter. Like many East Coasters, Tuesday’s earthquake shook me from my seat. I was in a coffee shop in Northern Virginia. Some people ran outdoors. Others dropped under tables. I can’t say how long it lasted, but for the last few violent seconds…
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