Narcolepsy
Unbelievable Broad For A Day – My Interview on Sirius XM Radio
“Am I dreaming?” I asked myself, walking into the Sirius XM Radio studios this morning. I peered into each soundproof spaceship-like studio with wide eyes. Today, I was a guest on the BROADMINDED show – the honor of a lifetime. Strangely, I wasn’t nervous. The Broads, Christine and Molly, are funny, friendly and down-to-earth. Besides…
Read MoreJulie Flygare Featured in ABC News Article about Narcolepsy with Cataplexy
I’m so honored to be featured in an ABC News article about narcolepsy and cataplexy! “Narcolepsy: Woman Fights to Stay Standing, Even on Dates” by Susan Donaldson James, ABC News April 4, 2012 I really enjoyed interviewing for this article – dating with narcolepsy isn’t something I’ve discussed much with the media, so my responses…
Read MoreFlygirl Takes On Flying Trapeze Despite Cataplexy
“Right hand on bar, toes over edge, left hand on bar… Left hand… Julie?” I am 23 feet above ground, on a small platform with the friendly trapeze man, Chad, pulling my harness/corset backward as I lean forward over the edge. Below – a net and a few miniature smiling faces. I’m supposed to…
Read MorePeople Who Inspire Me: High School Students and Neuroscientists
Today, my inspiration comes from Boston and North Carolina. In Boston, a female neuroscientist, Nancy is training to run the Boston Marathon for Wake Up Narcolepsy. She researches sleep-disordered breathing, but she’s become aware of narcolepsy. Nancy states: “Patients are the reason we as scientists go to work every day… I have run a few marathons before,…
Read MoreClimbing onto the Tightrope
“Life should be lived on the edge of life. You have to exercise rebellion: to refuse to tape yourself to rules, to refuse your own success, to refuse to repeat yourself, to see every day, every year, every idea as a true challenge – and then you are going to live your life on a…
Read MoreSLEEP WALK 2012 Takes Big Footsteps Across America
Wow, the buzzzzz around the SLEEP WALK this year is exciting! We have nearly 90 participants from 14 states registered to attend the second annual SLEEP WALK 2012 in Washington DC, and I’m SO excited to announce that SLEEP WALK 2012 is traveling some 2,700 miles to Sacramento, CA! Full details here. If you…
Read MoreSave The Date: SLEEP WALK 2012 on March 10 to raise awareness about narcolepsy & healthy sleep
On Saturday March 10th, the second annual SLEEP WALK to raise awareness about narcolepsy and healthy sleep for all will take place on the National Mall in Washington, DC. March 10th is a special day of National Sleep Awareness Week dedicated to narcolepsy called “Suddenly Sleepy Saturday.” With the official U.S. National Park Service Permits…
Read MoreCrow Pose: To Risk Falling On Your Nose
A crow is a large garbage-eating bird with a loud cry. It is also inverted balancing yoga pose in which you prop your thighs against armpits, squeeze abs tight, hinge forward and pray not to nose-dive! Over the past 6 months of practicing yoga, my reaction to crow pose has been consistent: “Oh…
Read MoreThe F Word
The F word is my favorite word and the subject of today’s post. “So what is narcolepsy exactly?” someone asks. A thousand words race through my head. If I was a computer, my screen would freeze at this point. System non-responsive… I spit out a few nonsensical statements and then shut down. Communication failure. Truth…
Read MoreREM Runner Julie Flygare Featured in I AM Modern Magazine
I am so honored to be featured in I AM Modern Magazine’s Holiday 2011 Edition. I AM Modern is a Health, Beauty & Lifestyles Magazine for Modern Woman of the Washington DC area. It’s a social media fueled magazine and offers great articles about the Washington DC suburbs. Since moving to the area, I’ve enjoyed…
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