Narcolepsy in the News

More narcolepsy in the news? It’s true.  
This Thursday, Nov 17th at 4pm, ABC WTVD Channel 11 in Raleigh, NC area will feature a very special report about my personal hero, Haven! 
Haven is an amazing young woman, age 10, living with narcolepsy and cataplexy.
Her story is featured on my blog here and in my feature article “Wide Awake and Dreaming,” in AVALON Magazine Holiday Dream Issue 2011 (available at Barnes and Nobles).
Please join me in thanking Haven and her family for sharing their story to help raise awareness about narcolepsy. 
I sent these photos to Haven the morning of her interview to remind her – she’s not alone and that we’re cheering for her!
Here’s the video online!
Haven: 200,000 Americans with Narcolepsy say “THANK YOU!” 


  1. Anonymous on November 16, 2011 at 4:00 pm

    Thanks, so much! I just watched your video. NICE!!! I hope our interview will go as well as yours. You are such an inspiration to so many, one of which is a very sweet-spirited little girl who won my heart completely 10 wonderful years ago. Thank you, again.
    Diantha Cavnar

  2. Gail on November 17, 2011 at 11:05 am

    I just got the chills following a hot flash reading this blog. I wish Haven all the best. You are a great roll model for Haven. The Narcolepsy Network is lucky to have brought you together.
    Congrats to Haven.

  3. Heather on November 17, 2011 at 12:33 pm

    I, too, got chills and a hot flash, followed by a small head bob after reading this. 🙂

    Narcolepsy may be a challenging road to travel some days, but it helps to have a navigator through a community of such awesome people to support one another and to help raise awareness.

  4. Sarina on January 7, 2012 at 8:25 pm

    I'm a 15 year old girl and I suffer from Narcolepsy as well, everyday Is a struggle for me with school and changing my medication to find the right one. When my doctor told me to help people understand and educate I started a Blog/website/forum area for people who suffer like this to, and i'm hoping to change peoples idea of it being a thing that traps you make it like a freedom and grasp the fact that we can make a difference. So please come visit my website and read my blog.

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