Narcolepsy
Julie Flygare Writes Cover Narcolepsy Story for Caring Voice Coalition’ Community Magazine
The Summer 2012 edition of Community Magazine is out and hotter than ever! I really enjoyed writing the cover story and working with Caring Voice Coalition’s team – they are passionate about patients! Check out my feature narcolepsy article, “In Sickness and In Health” pg. 16-19: [issuu width=420 height=272 backgroundColor=%23222222 documentId=120627200108-e7727450584c4c56af6093c6d21d4463 name=cvc_summer2012 username=rocketpop tag=cvc unit=px v=2]…
Read MoreNice News Segment on Narcolepsy with Cataplexy
This segment features a lovely young woman, Kay Underwood, living with narcolepsy and cataplexy. GMTV accurately and effectively highlighted narcolepsy with cataplexy. Hip hip hurray! This video shows Kay collapsing while laughing – but she is not falling over asleep – she’s falling over with the paralysis of dream sleep while awake. Why is Kay Underwood collapsing when she…
Read MoreTouching My Narcolepsy Memoir
“If there’s a book you really want to readbut it hasn’t been written yet, then you must write it.”-Toni Morrison First, I held my book in my head. Next, I moved it to my computer. This weekend, I held my manuscript in my arms for the first time! It was magical (and heavy). I couldn’t help but…
Read MoreREM Runner’s Summer Reading
I love summer. Lightening bugs, late sunsets, weddings, and trips to the beach! Here’s what is in my beach bag this summer: ISLAND PRACTICE Cobblestone Rash, Underground Tom, and Other Adventures of a Nantucket Doctor by Pam Belluck A spirited true story of a colorful, contrarian doctor on Nantucket, a world-famous yet strikingly offbeat corner of America. Dr.…
Read MoreNational Geographic Channel Features Narcolepsy with Cataplexy on Taboo: Strange Behavior (Video Preview)
On Sunday, June 24, 2012, 10pm ET, National Geographic Channel will air Taboo: Strange Behavior featuring narcolepsy with cataplexy. Watch a short video preview of National Geographic Channel Taboo: Strange Behavior featuring Narcolepsy here. This preview highlights cataplexy, a symptom of narcolepsy when emotions (humor, annoyance, joy, anger) causes loss of muscle tone without loss of consciousness.…
Read MoreNBC Nightly News with Brian Williams Features Narcolepsy’s Role in Insomnia Drug Developement
An upcoming insomnia medication, Suvorexant developed from our understanding of narcolepsy. At the SLEEP 2012 Conference today, Merck announced results for additional clinical trials – indicating that the drug made people fall asleep 40 percent faster and sleep 40 percent longer than placebo. I wasn’t able to attend this conference session today. NBC’s Nightly News…
Read MoreQuit It To Win It
I QUIT! In less than one mile. I felt more exhausted than after finishing the Boston Marathon. How could this be? I was scheduled for one of my hardest training workouts for MWRR, yet I was truly running on empty. Oddly, this was not an episode of EDS (excessive daytime sleepiness) associated with narcolepsy, I’d…
Read MoreHappy Mother’s Day from REM Runner
“Love me when I least deserve it, because that’s when I really need it.” -Swedish Proverb This Mother’s Day, I’d like to say thank you – first and foremost to my MOM! Many of my readers may not know that I was home-schooled for 7th & 8th grade. My mom has always been very active…
Read MoreHello, my name is NOT G.I. Jane.
“Don’t believe what your eyes are telling you.All they show is limitation. Look with your understanding, find out what you already know, and you’ll see the way to fly.” -Richard Bach “I don’t wanna run. I don’t wanna climb. I’m sick of fighting. I’m exhausted.” These thoughts cross my mind daily. I do not wake…
Read MoreThe View From Dreamworld
Did you know that the boundaries between dreaming and consciousness are broken down in the brains of people with narcolepsy? I experience my night dreams as real as reality. So during the day, I chase down my life dreams. Current dreams I’m chasing: the steepest road race in America and my memoir. Is it selfish…
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