Narcolepsy
Project Sleep Scentsy Fundraiser
Holiday shopping for a good cause – I’m so excited to announce the Project Sleep Scentsy Fundraiser!! PROJECT SLEEP is a new non-profit organization founded by yours truly, Julie Flygare. The core mission of PROJECT SLEEP is to educate people about sleep health and sleep disorders. Lelia Phillips is an Independent Scentsy Consultant who also…
Read MoreGuest Post: Dear Dylan – A letter from Jennifer to her son
Guest post by Jennifer to her son Dylan in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ———— Dear Dylan, Today has been a rough day for you. Your great grandma is being buried today and it’s triggered an emotional state neither one of us understands. We have both been…
Read MoreGuest Post: Dear Angie
Guest post by Angie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. —————- Dear Angie, Today you are filled with relief since you have known something is wrong for 20 years and but scared because today you have a name for it. You will send your referring Nurse Practitioner,…
Read MoreSpeaking at FIU Medical School
On Monday, October 21, I had the honor of presenting at FIU Medical School to first and second year med students. I shared my journey with narcolepsy – from the mysterious beginning symptoms to diagnosis and treatment. I explained my transformation from hating narcolepsy to becoming a leading narcolepsy advocate – raising my voice up…
Read MoreCelebrating my 4-year Blogging Birthday
Today, in honor of REM Runner blog’s 4th birthday, I’m unveiling the first-ever Narcolepsy Advocacy App. I’m SO excited to give this FREE educational tool to the narcolepsy community. Please spread the word! Paulo Coelho once said, “What is Success? It is being able to go to bed each night with your soul at peace.” The past…
Read MoreUnveiling Julie Flygare’s Narcolepsy Advocacy App
Today, I’m thrilled to release Julie Flygare’s Narcolepsy Advocacy Center – the first-ever narcolepsy mobile app available to download for FREE today (instructions below). Watch Introductory Video: Download Instructions: From the iTunes App Store or Google Play Store, download Mobile Health Library When download is complete, launch the app and “Accept” the Terms &…
Read MoreGuest Post: Dear Robin
Guest post by Robin in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ———— Dear Robin, Ok! Finally an answer for why you have been exhausted for 12 long years! Why you’ve never seen the end of a movie, fall asleep in the voting booth, and can’t seem to get…
Read MoreGuest Post: Dear Katie (A Teenage Narcoleptic)
Guest post by Katie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ————- Dear Katie, Today you will be diagnosed with a sleeping disorder. Though you feel it is obvious that you have Narcolepsy, do not get upset that you are diagnosed with having Idiopathic Hypersomnia; trust me, it…
Read MoreGuest Post: Dear Brave Super Sweet Jennifer
Guest post by Jennifer in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ————- Dear Brave, Super Sweet Jennifer, Your journey with Narcolepsy includes some super seriously hard issues like, harmful feelings of seclusion, the effects of isolation, crying yourself to sleep, being constantly misunderstood, questioning your…
Read MoreGuest Post: Dear Jennifer
Guest post by Jennifer in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ———- Dear Jennifer, Today you are finally relieved to find out you have had Narcolepsy this whole time. After visits and visits to the doctor with Mom and them telling you over and over that its just…
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