Narcolepsy Doctors
Sleep Walks in Alabama, Texas and Hawaii Celebrate National Sleep Awareness Week 2014
How are you celebrating National Sleep Awareness Week 2014? I’m thrilled to announce four Sleep Walk Events across the USA! Sleep Walk Events are the signature event series of the new non-profit organization, Project Sleep. Please join us in raising awareness about sleep health and sleep disorders. Sleep Walk Tuscaloosa – March 8, 2014 at…
Read MoreHarvard Medical School’s New Narcolepsy Website
I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety. I had the…
Read MoreRaising Narcolepsy Awareness at UCLA Medical School
Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient…
Read MoreIntroducing ‘The Sleep Diet A Novel Approach to Insomnia’ – Guest Post by Dr. Jose Colon
REM Runner’s Note: Dr. Colon is a diamond of a sleep doctor – he’s passionate about helping people. I’m proud to call Dr. Colon a friend and fellow sleep advocate. His new book is an exciting addition to the sleep community. Please join me in thanking him for his tireless efforts on behalf of sleepy…
Read MoreJoin Me! Narcolepsy Twitter Chat on 10/31/13
This Thursday, Oct. 31, 2013 at 11:45 a.m. ET, join me for an exciting Narcolepsy Twitter Chat with narcolepsy medical experts and patient advocate leaders. Use Hashtag #Nchat or follow along on TweetChat here. Co-leaders include The Global Genes Project (@GlobalGenes), Dr. Shelby Harris of Montefiore Medical Center (@MontefioreNYC), Julie Flygare, JD (@REMRunner) and Wake Up Narcolepsy (@WakeNarcolepsy). Beginning at…
Read MoreWhat To Say & NOT Say to Narcolepsy Patients
While speaking at SLEEP 2013, a doctor asked a great question: “Are there things I should or shouldn’t say to my narcolepsy patients?” The question caught me off-guard. It was so… thoughtful! Our panel provided some tips. Please add your suggestions in the comments below. What doctors should Say: Set reasonable expectations of working together long…
Read MoreThings I Love: EatSleepPlay at the Children’s Museum of Manhattan
“EatSleepPlay: Building Health Every Day” is an innovative exhibition at the Children’s Museum of Manhattan with over 70 interactive exhibits. This huge arts installation engages children (and adults) towards making healthy decisions in nutrition, sleep and active play. As reported by the New York Times:The “Sleep” section illustrates all the functions the body performs during nonwaking…
Read MoreLink between H1N1 flu and narcolepsy in children and adults: SLEEP 2013 Research Update Part I
At SLEEP 2013, I attended many fascinating sessions exploring the frontier of sleep science. I am not a scientist, but as a sleep and narcolepsy advocate, I will provide major takeaways from SLEEP 2013’s scientific program in upcoming blog posts. At the meeting, new data from Finland, France and China further suggested a link between…
Read MoreHello from SLEEP 2013!
This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients…
Read MoreSchool Accommodations with Narcolepsy Video
My latest video describes accommodations for succeeding in school with narcolepsy. Watch below or on YouTube: Check back soon for more videos. Thank you to Alex Withrow for generously giving his time and pro filming skills to make this possible! Watch full video series Watch Video #19: Riding the Waves of Narcolepsy – Waterskiing with…
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