Narcolepsy Doctors
REM Runner’s Top 9 Inspiring Female Health Advocates Part II – The Sleep Team
In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams. These women are trailblazers – leading the way for other women to optimize their health and triumph over adversity. Part I highlighted leaders in Women’s Health issues. Today, I present 3 superstar sleep advocates: 4. Arianna…
Read MoreDr. Mignot Discusses Current State of Narcolepsy Research with NIH’s Dr. Twery
Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness! Thank you Dr. Twery, Dr. Mignot and NHLBI…
Read MoreBeing Your Own Health Advocate: Julie Flygare Narcolepsy Awareness Video 11
In this video, I reflect on coming to terms with daytime sleepiness and learning to speak up to my doctor. When symptoms and side effects are invisible, it’s crucial to communicate effectively with health professionals. Watch below or on YouTube. Thank you for watching and come back for more videos soon. A big thank you…
Read MoreNarcolepsy in the Classroom – Web Broadcast Event
Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C. LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from…
Read MoreMy Narcolepsy Memoir is Published and On Sale!
I’m thrilled to release Wide Awake and Dreaming: A Memoir of Narcolepsy! Three million people worldwide live with narcolepsy, a fascinating yet little known disorder of the sleep/wake/dream cycle. Purchase Paperback:Amazon.com, Amazon.co.uk, Amazon.de, Amazon.fr, Amazon.it, Amazon.es Kindle Edition: Amazon.com, Amazon.co.uk, Amazon.de, Amazon.fr, Amazon.it, Amazon.es Waking up on Saturday morning, an aura of peacefulness surrounded me. I smiled from ear-to-ear. Later, my boyfriend surprised me with flowers and…
Read MorePraise for “Wide Awake and Dreaming: A Memoir of Narcolepsy”
So excited to share my very first book review here! Written by the amazing blogger Amanda of “Small Steps: A teenager’s look at living with multiple chronic illnesses including an undiagnosed condition, narcolepsy, cataplexy and gluten and lactose intolerance.” Thank you so much, Amanda! What the experts are saying about my book: “Julie’s memoir describes with eloquence…
Read MoreDiscovery Channel Narcolepsy Video
Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story. Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…
Read MoreNarcolepsy on Discovery Channel Featuring Julie Flygare
This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST). It was an honor to work…
Read MoreMacy Gray Raises Narcolepsy Awareness
“Narcolepsy can be really damaging to your quality of life.” – Macy Gray Macy Gray recently spoke about narcolepsy in an in-depth interview with HuffPost Live. Macy stated that a close family member has struggled with narcolepsy for many years. “It’s very debilitating,” explained Macy Gray, a world-famous singer-songwriter, record producer and actress. Our narcolepsy wizard,…
Read MoreGathering for Families of Children with Narcolepsy in Washington DC
Has your child or teen been diagnosed with narcolepsy? You and your family are not alone! Next Saturday, my amazing Washington DC support group is hosting a get-together for young adults and families with narcolepsy. Families, caregivers and friends come together for an informative afternoon. Teens and young adults with narcolepsy are also encouraged to attend…
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