Narcolepsy Diagnosis
Raising Narcolepsy Awareness at UCLA Medical School
Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient…
Read MoreNarcolepsy Lunch Break Webinar
Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD…
Read MoreIntroducing the Jack & Julie Narcolepsy Scholarship
Today, I’m thrilled to unveil the Jack & Julie Narcolepsy Scholarship, the first-ever scholarship supporting students with narcolepsy while also raising awareness about narcolepsy in high school and collegiate settings. Beginning in 2014, one scholarship of $1,000 will be awarded to a high school senior who plans to attend a four-year university and exemplifies courage and…
Read MoreDear Diagnosis Blogathon – Words to Live By
On Nov. 1, I kicked off the “Dear Diagnosis” Blogathon – inviting fellow narcolepsy and chronic disease bloggers to write a letter to themselves on their diagnosis day. So far, I’ve collected 47 inspiring, courageous and beautifully-written letters. (Read here.) In launching this blogathon, I had no grand expectations. I am blown away by the results.…
Read MoreGuest Post: Dear Dylan – A letter from Jennifer to her son
Guest post by Jennifer to her son Dylan in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ———— Dear Dylan, Today has been a rough day for you. Your great grandma is being buried today and it’s triggered an emotional state neither one of us understands. We have both been…
Read MoreGuest Post: Dear Angie
Guest post by Angie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. —————- Dear Angie, Today you are filled with relief since you have known something is wrong for 20 years and but scared because today you have a name for it. You will send your referring Nurse Practitioner,…
Read MoreGuest Post: Dear Robin
Guest post by Robin in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ———— Dear Robin, Ok! Finally an answer for why you have been exhausted for 12 long years! Why you’ve never seen the end of a movie, fall asleep in the voting booth, and can’t seem to get…
Read MoreGuest Post: Dear Brave Super Sweet Jennifer
Guest post by Jennifer in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ————- Dear Brave, Super Sweet Jennifer, Your journey with Narcolepsy includes some super seriously hard issues like, harmful feelings of seclusion, the effects of isolation, crying yourself to sleep, being constantly misunderstood, questioning your…
Read MoreGuest Post: Dear Jennifer
Guest post by Jennifer in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ———- Dear Jennifer, Today you are finally relieved to find out you have had Narcolepsy this whole time. After visits and visits to the doctor with Mom and them telling you over and over that its just…
Read MoreGuest Post: Dear Katie
Guest post by Katie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ——– Dear Katie, First of all, that jaw drop of yours was hilarious! I know you’re conditioned to hear “I don’t know” if the letters “D” and “r” come before a name, but realize where you are…
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