Sleep Disorder

The Summer 2012 edition of Community Magazine is out and hotter than ever! I really enjoyed writing the cover story and working with Caring Voice Coalition’s team – they are passionate about patients! Check out my feature narcolepsy article, “In Sickness and In Health” pg. 16-19:  [issuu width=420 height=272 backgroundColor=%23222222 documentId=120627200108-e7727450584c4c56af6093c6d21d4463 name=cvc_summer2012 username=rocketpop tag=cvc unit=px v=2] […]

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“Don’t be afraid of the space between your dreams and reality. If you can dream it, you can make it so.” I dream a lot, but one dream stood out recently: I saw myself  in a handstand position – whirling my legs around like I was an acrobatic superstar. Um, yeah right. I love yoga, […]

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I signed up for an art journaling workshop at Tranquil Space last summer, and almost didn’t go because I feared “wasting my time.”  I’ll never forget when the wonderful instructor, Kimberly said, “Write down what you want by this time next year, July 23, 2012.” My whole body clenched up. Somewhere along the way, I’d forgotten that […]

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Touching My Narcolepsy Memoir

by julie on July 2, 2012

“If there’s a book you really want to readbut it hasn’t been written yet, then you must write it.”-Toni Morrison  First, I held my book in my head. Next, I moved it to my computer. This weekend, I held my manuscript in my arms for the first time! It was magical (and heavy). I couldn’t help but […]

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REM Runner’s Summer Reading

by julie on June 24, 2012

I love summer. Lightening bugs, late sunsets, weddings, and trips to the beach! Here’s what is in my beach bag this summer: ISLAND PRACTICE Cobblestone Rash, Underground Tom, and Other Adventures of a Nantucket Doctor by Pam Belluck A spirited true story of a colorful, contrarian doctor on Nantucket, a world-famous yet strikingly offbeat corner of America. Dr. […]

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To Fly: Running Mt Washington Road Race

by julie on June 20, 2012

I started this journey with a broken heart; I felt lost and alone without my Dad. I wanted so badly to re-connect with him on the mountain. While training, I faced fears and trampled over my comfort zone many times. I gained support from people near and far. By race day, my heart was filled with love […]

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Mt Washington Road Race 2012 Video

by julie on June 18, 2012

Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy.   Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so […]

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REM Runner Attends SLEEP 2012 Conference

by julie on June 18, 2012

I had the honor of attending SLEEP 2012 in Boston, MA last week. This conference brought together sleep doctors and researchers from around the world. I volunteered at Wake Up Narcolepsy’s exhibition hall booth. It was great to see familiar faces and meet many new people.  Narcolepsy was very well represented at SLEEP 2012 with […]

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I’m pleased to share groundbreaking results of “AWAKEN,” a survey finding that only 50 Percent of Americans understand significant health impact of narcolepsy, and that many physicians are not comfortable diagnosing narcolepsy. Despite the serious nature of narcolepsy, Americans also misperceive its severity compared to other diseases of similar health concern or prevalence. The results were […]

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Today’s Portsmouth Herald features an article about my quest to honor my dad, Tom Flygare by running Mt Washington Road Race on Saturday while living with narcolepsy with cataplexy. Read: “Flygare to run Mt Washington race in honor of her dad,” by Charles McMahon, Portsmouth Herald, June 15, 2012. Please consider supporting my quest here. Packing for my […]

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