Children with Narcolepsy

Nap Shame. I’ve got it. Do you?

by julie on February 13, 2016

In this short audio clip, I explore my feelings of shame and embarrassment around taking a nap at work. (Also available here) Do you have nap shame or are you an empowered napper? I want to hear your thoughts!

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Recently, I received a video from a mother of a young boy with narcolepsy. Warning: I cannot watch this video without crying. Brooke describes: “My 11-year-old son, Owen, was diagnosed with narcolepsy last spring. It was and is scary, and there just isn’t a lot of information out there, especially positive information! So you have […]

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While crossing the finish line of the San Diego Rock n Roll Marathon was an awesome moment, my biggest prize came yesterday when Project Sleep gave out TEN scholarships to students with narcolepsy through the Jack & Julie Narcolepsy Scholarship program. Meet the 2015 Jack & Julie Narcolepsy Scholarship Recipients: View Scholarship Awards Announcement View/Download […]

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Meet Collin and Conner, two friends in the 5th grade in Columbus, Mississippi. I’ve always loved thier NARCOLEPSY: NOT ALONE photo, but recently learned about the friendship behind the smiles. Collin was diagnosed with narcolepsy with cataplexy at age 8. Despite the challenges he faces, Collin has stayed active as a student and athlete. He […]

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This past year has been very tough for Daishia, age 11, who was recently diagnosed with narcolepsy with cataplexy. In addition to narcolepsy, she is also dealing with a seizure disorder, migraines and obstructive and central sleep apnea. “I wish I could take all her pain and struggles away and make things easier for her,” describes her […]

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I’m thrilled to share that Project Sleep unveiled the Jack & Julie Narcolepsy Scholarship 2015 to support students with narcolepsy while also fostering awareness of this often misunderstood disorder in high school and collegiate settings. This spring, three high school seniors will be awarded $1,000 toward their college education. Please read FULL application for details. Last year, […]

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Supporting a Friend With Narcolepsy

by julie on August 8, 2014

If your friend or loved one was diagnosed with narcolepsy, you may wonder the best way show support. You want to help your friend through this difficult time, but it can be hard to know what to say or do. While there are no set rules for supporting a friend with narcolepsy, I hope these […]

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Meet Xander, a 4-year-old superstar with narcolepsy living in Canada. Xander has big bike racing dreams and isn’t letting his narcolepsy slow him down. Watch Xander fly by in this video: This was Xander’s first Bmx Bootcamp for the season. Bmx track racing is a form of off-road bicycle racing, derived from motocross racing. I […]

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Why NARCOLEPSY: NOT ALONE Matters…

by julie on May 22, 2014

Why NARCOLEPSY: NOT ALONE matters:  “You have touched my daughter in a way I don’t believe I could ever to make her feel. To see her excitement passing out the bracelets, sharing that she has narcolepsy and cataplexy and she’s PROUD, it’s such a great change for her.” -Karen, Kenya’s Mom “I just got my shirt in […]

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The Jack and Julie Narcolepsy Scholarship is delighted to announce that two recipients of the inaugural scholarship 2014 are Kendra Larrabee and Jacob Zeiher. We are thrilled to award both Kendra and Jacob a $1,000 scholarship toward their college education. The Jack & Julie Narcolepsy Scholarship is the first-ever scholarship supporting students with narcolepsy while also […]

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