We ALL have them. So what do we do about them?
My advice is two-fold:
1. You can invite your narcolepsy non-supporter to a sleep doctor’s appointment, local support group, or Narcolepsy Network Conference. You can also suggest my videos or my book (shameless plug 😉 )! Ultimately, you may not be able to get through to some individuals. This is very unfortunate, but leads me to my second piece of advice.
2. Be patient, you will find supportive people to add to your life.
With time, I’ve met people who see my narcolepsy as something “cool” and courageous about me. I could never have predicted who would think this – but surprisingly, respecting narcolepsy comes so easily to some people. They just “get it” and it’s not always clear why. I cherish these friendships and wonder why I was banging my head against the wall trying to get others to understand for so long.
Some of my original non-supporters are still in my life by circumstance or because they bring me happiness and support in other areas. My narcolepsy non-supporters don’t bug me nearly as much anymore because I’ve lowered my expectations on this topic and hold tight to those friends who “get it” so effortlessly.
This advice comes from my personal experience. I’d love to hear others’ strategies for coping with this challenge.