Posts Tagged ‘Narcolepsy Awareness’
Harvard Medical School’s New Narcolepsy Website
I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety. I had the…
Read MoreRaising Narcolepsy Awareness at UCLA Medical School
Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient…
Read MoreNarcolepsy Lunch Break Webinar
Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD…
Read MoreOfficial NARCOLEPSY: NOT ALONE T-shirts!
The official NARCOLEPSY: NOT ALONE t-shirts are here! Raise awareness about narcolepsy while also supporting a good cause. Proceeds support Project Sleep, my new non-profit raising awareness about sleep health and sleep disorders. Purchase by Jan. 26, 2014. View/Order T-Shirts – Available in three styles: men’s/unisex, women’s fit and youth sizes – ONLY for sale…
Read MoreNARCOLEPSY: NOT ALONE Reaches 50 States!
On New Year’s Eve, NARCOLEPSY: NOT ALONE reaches an exciting milestone – collecting photos from all 50 U.S. States! Thank you to Jamie and her mother for sending this photo from MONTANA today. Next time you meet someone who thinks narcolepsy is just a joke – you can tell them a little story about the 840…
Read MoreNarcolepsy Infographic: What Is Narcolepsy?
I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: DOWNLOAD FILE Thank you to my amazing graphic designer, Anthony Nesossis. Thank you to Alex Withrow for his pro video production! Read about the making of the infographic here.…
Read MoreMy Twisted Fairytale: A Poem by Shelby Stein
I feel like a princess locked in a tower. My Narcolepsy is my dragon guard. My weight loss is the lava moat that makes me cower more. My evil witch is merely my medicine, At first we didn’t see the harm, For it had a magic disguise to seem so beautiful. My poison apple of my…
Read MoreWatch Video: TV Narcolepsy Interview with Julie Flygare on Forward Motion with Karen Allyn
Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
Read MoreThings I love: Powerful Poetry
Tears on my faceby: Elizabeth Olsen Tears on my face,No place to go Mind stuck in time, Body out of control. Burning inside A feeling I died Things that are not there Sounds I can share Hope is fleeting Time defeating Who would dare A battle unfair Light traps the dream I can not scream…
Read MoreJulie Flygare Launches Narcolepsy Awareness Video Campaign
I’m so thrilled to launch my narcolepsy awareness video series. I’ve dreamed of this project for many moons. It’s surreal to see it through. Watch my introductory video here or on YouTube. Thank you so much for checking out my video! I will be adding exciting new content regularly, so check back soon. Many thanks…
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