Posts Tagged ‘Narcolepsy Awareness’
Filming the Honda Narcolepsy PSA
Over the past few months, I’ve worked with Honda and a Honda agency, RPA, to create a narcolepsy public service announcement (PSA). I’m so proud and honored to have served as a real face and voice of narcolepsy for this project. In preparation, I shared my memoir, fact sheets, patient experience and key awareness points. It…
Read MoreViral Narcolepsy with Cataplexy Video
A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on YouTube. This is a powerful video and I am grateful to Sarah Elizabeth for bravely sharing her experience! Sarah Elizabeth is primarily experiencing a narcolepsy symptom called cataplexy here. Cataplexy is a sudden loss of muscle tone, resulting in…
Read MoreWhat does NARCOLEPSY: NOT ALONE mean to you?
What resonates with you? I created this word-collage using popular words from NARCOLEPSY: NOT ALONE campaign blog posts. For me, the words “connect”, “badass” and “tears” stand out. I love that positive and negative experiences are captured here. No matter where you are on your journey, your feelings are valid and normal, its all part of the narcolepsy roller-coaster.…
Read MoreCongratulations Winners: Narcolepsy Awareness Giveaway!
Thank you to everyone who submitted new NARCOLEPSY: NOT ALONE photos during the First Birthday Giveaway Contest! I finally just drew the winners: Rayanne in the UK Kellie in Florida Suzy in Australia Congratulations! I will mail your prize-packs this week with over $60 worth of narcolepsy awareness gear including: 2 new infographic posters (one for you and…
Read MoreNarcolepsy Keynote Speaker in Australia!
Australia, here I come! I’m beyond honored and thrilled to announce that I will be a keynote speaker for the First Patient Conference hosted by Narcolepsy Support Australia on the Gold Coast in Queensland on May 1-3, 2015. Narcolepsy Expert Extraordinaire, Dr. Emmanuel Mignot is the other confirmed keynote speaker! In addition, I will present sessions on…
Read MoreNARCOLEPSY: NOT ALONE Visits the Dominican Republic
Last week, I traveled to the Dominican Republic on vacation with my boyfriend. Knowing the Dominican Republic was not yet included in the NARCOLEPSY: NOT ALONE campaign, I was SO excited to personally add the 38th country to our amazing international photo series. In a rush to pack, I forgot my NARCOLEPSY: NOT ALONE paper…
Read MoreNarcolepsy on The Doctors Show
On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate,…
Read More“What is it like to have Narcolepsy?” Communication Tips
Narcolepsy is a neurological disorder of the sleep/wake cycle affecting 1 in every 2,000 people. As a person with narcolepsy, it can be overwhelming to explain the symptoms and affects on life. Typical Questions about Narcolepsy and Simple Answers: Provided by Julie Flygare’s Narcolepsy Mobile App – FREE download today! Q: What is narcolepsy?A: Narcolepsy is a neurological…
Read MoreSleep Walk Jacksonville Shines Light on Sleep Health & Sleep Disorders – Guest Post by Dietra Mohrman
Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic Beach, FL. They registered and collected event t-shirts, wristbands, buttons and festive goodies. Attendees shared their amazing sleep spirit posters. As the local organizer and “Sleep Fairy” for…
Read MoreNARCOLEPSY: NOT ALONE Hits 1,000!
Today, the NARCOLEPSY: NOT ALONE campaign surpassed 1,000 photos. This stunning photo series highlights the SUPERSTARS of narcolepsy and their supporters in all 50 U.S. States and 37 countries around the world, proving narcolepsy is REAL and we are NOT ALONE! This campaign is changing lives. “Clayton didn’t want anyone knowing he had narcolepsy,” described his mother, Bethany.…
Read More