Sleep in to speak out! Join Project Sleep’s SLEEP IN 2016 today.
On March 11-13, Project Sleep is taking to our beds for SLEEP IN 2016 to make PEACE with SLEEP during National Sleep Awareness Week! Challenge yourself to stay in bed for 12-48 hours over the weekend and join an international movement to raise awareness about sleep health and sleep disorders. Register today (it’s free): www.crowdrise.com/sleepin2016 With…Read More
DALLAS, will you SLEEP WALK with me?
I’m sooo excited to announce that I’ll be visiting Texas for SLEEP WALK DALLAS FORT WORTH on June 13, 2015. I can’t wait to raise sleep awareness with my DFW friends, plus I hear there’s face painting, prizes and a bounce house, so join us! IMPORTANT: Purchase t-shirt by Sunday, May 24th REGISTRATION: $5 in advance or at…Read More
Why I am Running a Marathon
Recently, I was featured as a Boston College “Soaring Eagle“ – for writing my memoir and founding Project Sleep. This was a huge honor, but also very ironic. While at BC Law, I felt like a total failure. Diagnosed with narcolepsy at the beginning of my second year, I scolded myself for falling behind and never securing…Read More
Celebrate Sleep Week with Project Sleep’s SLEEP IN!
Happy Sleep Week, friends! This National Sleep Awareness Week, I can’t wait for Project Sleep’s first-ever international SLEEP IN (#SLEEPIN2015). On March 6-8, we will be taking to our beds to raise awareness about sleep health and sleep disorders while fundraising for Project Sleep. Let’s make PEACE with SLEEP! Sign up today: www.crowdrise.com/SLEEPIN Full details: www.project-sleep.com/sleepin I truly cannot…Read More
Join Us! Sleep Walk Tampa Bay
In one month, on Sunday August 31, 2014, we will be walking on the beach to celebrate sleep in St. Pete Beach, FL! Please join myself and local host, Jessica starting at 9:00 a.m. for a 1.5 mile scenic beach walk and sleep spirit contest. Order event t-shirts by August 12, 2014. Join Project Sleep to celebrate…Read More
Taking on Narcolepsy as a New Mom: Guest Post by Cherae Robinson
REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story…Read More
Sign White House Sleep Petition Today!
Please join me in signing the Official White House Sleep Disorder and Sleep Health Awareness Petition! The petition poignantly states:“We petition the Obama administration to recognize the serious impact that sleep disorders have on life, help raise awareness of sleep disorders, promote sleep health for all ages, and to encourage naps over harmful energy drinks for…Read More
POWER (of the) NAP – Celebrating National Napping Day from Nap Rooms to Emergency Rooms
The Huffington Post reported that today is National Napping Day (as established in 1999 by a Boston University professor William Anthony, Ph.D., and his wife, Camille Anthony). “Our goal is to encourage folks to take a nap wherever they may be, at home, at the workplace or on vacation, and to make it a regular part of their healthy lifestyle,” Anthony said…Read More
Congressman Foster (D-IL) Submits Congressional Record Statements Supporting Sleep
Please join me in thanking Congressman Bill Foster (D-IL) for his efforts in recognizing National Sleep Awareness Week, March 3rd – 10th, 2013. Congressman Foster submitted statements for the Congressional Record, which called on his fellow colleagues to join him in recognizing National Sleep Awareness Week and to support the Sleep community by raising awareness…Read More
Julie Flygare Represents Narcolepsy at NIH & NIH’s Funding of Hypocretin Orexin Agonists for Narcolepsy Treatment
The 36th meeting of the Sleep Disorder Research Advisory Board (SDRAB) took place on Feb. 25 – 26, 2013 on the National Institutes of Health (NIH) Campus in Bethesda, MD. The current Board is comprised of five sleep researchers and four patient representatives, including yours truly, the REM Runner! Ad-hoc participants include Michael Twery, Ph.D.,…Read More