Shining Light on Sleep: Julie Flygare Represents Narcolepsy at Congressional Briefing
Room S115 of the U.S. Capitol quickly filled to capacity on Thursday May 31st at 2pm. It was a packed house with standing room only for the Congressional Briefing on the NIH Sleep Disorders Research Plan. Congressional staffers, patient advocates and sleep researchers were all in attendance. The prestigous presenters outlined the significant health and…Read More
Sleep: A Health Imperative. Congressional Briefing on the 2011 NIH Sleep Disorders Research Plan
On May 31, 2012, a Congressional Briefing of the 2011 NIH Sleep Disorders Research Plan will take place at 2 p.m. in the U.S. Capitol Building. The Sleep Research Society in conjunction with Congressman Michael Honda organized this event. The Congressional Briefing is open to the public. Patients and interested parties are encouraged to attend. Details below. The…Read More
SLEEP WALK 2012 Video
Yes, we got our groove on during SLEEP WALK 2012! Check it out: Thank you, Ethan Crawford for creating this awesome video! Thank you, Suzworks‘ Suzannah Weiss and Sue Dambrauskas for getting the party started with Nia. More fun videos here. More about Wake Up Narcolepsy here.Read More
When Dreams Come True – SLEEP WALK 2012
The week of SLEEP WALK 2012, I checked the weather obsessively like a bridezilla awaiting her wedding day. Hosting a “rain or shine” event outdoors in March is precarious. It could snow; it could be summer. Arriving at the National Mall early Saturday morning – the sun was shining brightly, not a cloud in…Read More
Bring It On! We have Sleep Spirit – DO YOU?
Grab your glitter glue, bedazzlers, ribbons, and stickers – it’s time to make creative sleep/dream themed signage for the second annual SLEEP WALK (Saturday March 10, 2012 at 9am on the National Mall). My close friend and Nia instructor Sue hosted an informal sign-making party this past Sunday with myself, Sze-Ping and Kerry. It was…Read More
Happy Sleep Week!
I’m so excited National Sleep Awareness Week is here (March 4-11th)! In preparation, I attended two sleep-related events last week on behalf of Wake Up Narcolepsy (WUN). NSART:On Thursday, I represented WUN at the National Sleep Awareness Roundtable (NSART). This was my second year attending this meeting. NSART is a national coalition of government, professional, voluntary,…Read More