Narcolepsy
Perception TV Show Features Narcolepsy
TNT’s crime-drama TV series, Perception, featured narcolepsy on a recent episode, “Alienation” (Season 2, Episode 2). Watch narcolepsy clip here: One character describes aliens coming into his bedroom shortly after he’s gone to sleep. This terrifying description caputures sleep paralysis (the inability to move) AND hypnagogic hallucination (seeing the aliens in his bedroom as if…
Read MoreRemembering Sharon Smith: A Tireless Narcolepsy Advocate and Dear Friend
Sharon Smith (far right) with NN friends, NN Conference 2010 On Friday, June 28, 2013, the narcolepsy community lost a quiet hero named Sharon Smith. Sharon passed away after fighting a prolonged illness. She served as President of the Board of Trustees of Narcolepsy Network and dedicating her life to supporting the narcolepsy community and volunteering for…
Read MoreNarcolepsy – NOT Normal and NOT Alone
Narcolepsy is NOT normal. But who wants to be “normal” anyway? This video is an empowering salute to all those who are “different” for whatever reason. As young adults- “fitting in” seems so important. All too often, children and teens with narcolepsy face unfair ridicule, bullying, and lame jokes. Hang in there. I promise…
Read MoreResults of the Burden of Narcolepsy Disease (BOND) Study: Guest Post by Dr. Mark Patterson
REM Runner’s Note: I asked my good friend and fellow narcolepsy advocate, Dr. Mark Patterson, to share some important information from the APSS SLEEP 2013 meeting. Thank you so much, Dr. Patterson, for this thoughtful well-written post. Dr. Mark Patterson’s Guest Post: I had the good fortune of attending the 27th Annual Meeting of…
Read MoreA Narco’s Tale: A Poem by Maureen Caden
I was diagnosed in 2003 and like many of us went through many years with unanswered fears. I knew I was not lazy as some days became rather hazy. I would will myself to stay awake I didn’t even have time to bake a cake. For sleep time would come This thing had me under…
Read MoreJulie Flygare Publishes Huff Post Narcolepsy Article
Check out my Huff Post article, “Stanford’s Research Provides Hope for Patients With Narcolepsy.” This is a dream come true for me! Arianna Huffington’s commitment to sleep is a huge inspiration to me. Thank you to the Stanford Sleep Blog for sharing my story.
Read MoreNarcolepsy Memoir Reaches Over 12,000 Readers in Six Months
Happy half birthday to Wide Awake and Dreaming! Six months ago, I published my book with joy and fear. Would people like it? Well, it’s been a whirlwind 6 months. Precious Moments: Reaching over 12,000 Readers First Place in San Francisco Book Festival Biography/Autobiography Award Receiving 146 Amazon Reader Reviews TV Interview on Forward Motion Ranked #1…
Read MoreWhere in the World is Wide Awake and Dreaming?
In six months, my book has reached readers all over the world. Here are some highlights. Thank you for sharing your photos. Send more to add to the collection!
Read MoreREM Runner’s 21 Day Yoga Challenge
I’m taking on a new challenge – doing yoga every day for 21 days! Returning from SLEEP 2013, my energy was low and my pants were tight. I needed a short-term goal to jump-start my summer. Today is day 4 of my challenge and I’m feeling GREAT. My body is sore, but in that good…
Read MoreMiss USA Contestant has Narcolepsy – Vote for Miss Louisiana Kristen Girault
Proud to be a person with narcolepsy today! Miss USA contestant – Miss Louisiana, Kristen Girault suffers from a mild case of narcolepsy. She spoke candidly about the challenges of narcolepsy with Inside Edition here. “My teachers used to throw erasers at me in class or complain that I was always falling asleep,” describes Kristen. “I promised that…
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