Narcolepsy
NARCOLEPSY: NOT ALONE Gallery & Map
In July 2013, I launched the NARCOLEPSY: NOT ALONE awareness campaign – to prove that narcolepsy is EVERYWHERE and we are NOT ALONE. This stunning photo series includes photos from all 50 U.S. States and 35 countries around the world, showcasing the REAL FACES of narcolepsy, a neurological disorder affecting 200,000 Americans & 3 million people worldwide. Meet my friends.…
Read MoreNARCOLEPSY: NOT ALONE Campaign Launch
Lost and alone. We’ve all been there. Today, I’m launching the NARCOLEPSY: NOT ALONE awareness campaign – to prove that narcolepsy is REAL and that we are NOT ALONE. People with narcolepsy AND supporters are invited to submit photos for the GALLERY & MAP. Watch introductory video: Join Us: People with narcolepsy AND supporters around the…
Read MoreNarcolepsy Infographic in School Presentation
My Facebook friend and fellow person with narcolepsy, Jennifer recently reached out to see if she could use my infographic as part of a narcolepsy presentation to her anatomy class. I was so honored and excited for Jennifer to share the infographic with her classamates! “My speech went great!” Jennifer reported afterward, “Thank you so much…
Read MoreRiding the Waves of Narcolepsy: Julie Flygare Narcolepsy Awareness Video #19
I’m so thrilled to share this video documenting my recent waterskiing adventure. Watch below or on YouTube. Thank you to Alex Withrow for his incredible video production skills and for believing in me. I never would’ve attempted this without his encouragement. Thank you to Brent, Maria and Owen – my boat crew and cheering squad…
Read MoreMeeting My Hero, Dr. Oliver Sacks
“Writing is better than morphine.” -Dr. Oliver Sacks This week, I had the opportunity to attend a book event with Dr. Oliver Sacks at Sixth & I in Washington, DC. Dr. Sacks discussed his recent book, Hallucinations – which includes a chapter on narcolepsy’s hypnagogic hallucinations. Dr. Sacks explained, “Hallucinations are high-jacking your perceptual system… You…
Read MoreThe Making of the Narcolepsy Infographic
In just one week, over 20,000 people have viewed the narcolepsy infographic! Here’s how my dream became a reality. What about narcolepsy? After viewing many cool health and disease infographics this past year, I couldn’t help but wonder, “What about narcolepsy?” This made me sad. Narcolepsy deserved an infographic too, but how? I wasn’t a graphic designer…
Read MoreJulie Flygare Featured in BC LAW Magazine
BC Law Magazine is currently featuring my story! READ HERE. The profile piece includes a excerpt from my memoir – fighting sleepiness in my first year property class. There’s also a nice article about my narcolepsy advocacy work. I’m not your typical law school grad, so BC Law Magazine sharing my alternative journey means more than…
Read MoreNarcolepsy Documentary in New Zealand
I’m so thrilled to share a recent narcolepsy documentary from New Zealand’s 3rd Degree show! The show follows two “Kiwis” (people from New Zealeand) living with narcolepsy and cataplexy. Watch here. One of my blog followers, Rhonda was featured in this great documentary. Rhonda explains, “I have had narcolepsy since I was a teenager and…
Read MoreNarcolepsy Infographic: What Is Narcolepsy?
I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: DOWNLOAD FILE Thank you to my amazing graphic designer, Anthony Nesossis. Thank you to Alex Withrow for his pro video production! Read about the making of the infographic here.…
Read MoreFilming Narcolepsy TV Show at Montefiore in NYC
This week, I had the honor of traveling to New York City for the filming of a PBS narcolepsy documentary. My interview took place at Montefiore Medical Center’s Sleep-Wake Disorders Center, a nationally-renowned narcolepsy center located in the Bronx, NY. Tuesday morning, I traveled to Montefiore to meet the producer and film crew of Healthy…
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