narcolepsy video
NARCOLEPSY: NOT ALONE Campaign Launch
Lost and alone. We’ve all been there. Today, I’m launching the NARCOLEPSY: NOT ALONE awareness campaign – to prove that narcolepsy is REAL and that we are NOT ALONE. People with narcolepsy AND supporters are invited to submit photos for the GALLERY & MAP. Watch introductory video: Join Us: People with narcolepsy AND supporters around the…
Read MoreLink between H1N1 flu and narcolepsy in children and adults: SLEEP 2013 Research Update Part I
At SLEEP 2013, I attended many fascinating sessions exploring the frontier of sleep science. I am not a scientist, but as a sleep and narcolepsy advocate, I will provide major takeaways from SLEEP 2013’s scientific program in upcoming blog posts. At the meeting, new data from Finland, France and China further suggested a link between…
Read MoreNarcolepsy & Exercise: Narcolepsy Awareness Video #17
As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms? My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you…
Read MoreNarcolepsy Awareness Video #15: Narcolepsy Chosen for FDA Initiative
I’m thrilled to release my 15th narcolepsy awareness video providing an update on narcolepsy’s placement in FDA’s Patient Focused Drug Development Initiative (PDFFI). For more posts about the FDA Initiative, click here. Thank you for checking out my video! Big thanks to Alex Withrow for his expert video production. Watch full video series Watch Video #19:…
Read MoreTips for Students with Narcolepsy Video
I’m thrilled to release my 14th narcolepsy awareness video! This video offers tips for students with narcolepsy based on my personal experience and various community members’ input. Everyone is different – please share tips in the comments below. Check back soon for more videos! Thank you to Alex Withrow for his expert video production. Watch…
Read MoreSchool Accommodations with Narcolepsy Video
My latest video describes accommodations for succeeding in school with narcolepsy. Watch below or on YouTube: Check back soon for more videos. Thank you to Alex Withrow for generously giving his time and pro filming skills to make this possible! Watch full video series Watch Video #19: Riding the Waves of Narcolepsy – Waterskiing with…
Read MoreNarcolepsy Videos Featured on EmpowHER
Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing visitors access to one of the largest women’s health and wellness content libraries on the web, as well as the largest online community of women discussing their…
Read MoreDr. Mignot Discusses Current State of Narcolepsy Research with NIH’s Dr. Twery
Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness! Thank you Dr. Twery, Dr. Mignot and NHLBI…
Read MoreSleep Steps Up: National Sleep Walk Kicks Off National Sleep Awareness Week in Washington, DC
On the same steps where Martin Luther King, Jr. gave his “I Have A Dream” speech, over 125 participants gathered last Sunday (March 3, 2013) to share their dream for America to get a good night’s sleep. The third annual National Sleep Walk brought together doctors, organization leaders, patients and sleep supporters from as far away as…
Read MoreWatch Video: TV Narcolepsy Interview with Julie Flygare on Forward Motion with Karen Allyn
Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
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