NARCOLEPSY: NOT ALONE
The 4th Annual Sleepy Pumpkin Patch 2013
Happy Halloween! Join my 4th annual Sleepy Pumpkin Patch by creating your own SLEEPY PUMPKIN. Be creative – anything sleep or dream related goes! Send a photo of your pumpkin to: REMRunner01@gmail.com by October 31st. Don’t feel like carving? No problem, you can always draw a picture or cartoon to submit. Thank you to Sarah and John…
Read MoreOver 140 People at Narcolepsy UK Conference 2013 Say NARCOLEPSY: NOT ALONE
Guest post by Narcolepsy UK: Narcolepsy UK held its latest conference in Watford, just outside London, on Saturday, Sept. 14, 2013 and it was a great success. Our speakers were Dr Cathy Hill, a specialist in sleep disorders in children, the Medical Detection Dogs charity, fiction author Sue Moorcroft and her research into creating a…
Read MoreA Unique Love Story: NARCOLEPSY: NOT ALONE’s Wedding Moment – Guest Post by Samantha Vandeberg
Guest post by Samantha Vandeberg: “Family” is a rather confused and distorted idea for me. During my adolescence, I became the child forgotten and learned that blood family didn’t necessarily equal love and support. My grandmother had raised me with endless love and beauty. She died when I was 13 and there was not a…
Read MoreFree E-Book Weekend Sept. 14-15, 2013
Recently, the NARCOLEPSY: NOT ALONE campaign soared past our 500 photo goal, with over 725 photos in the gallery now. Thank you for your support, I can’t tell you how much this campaign means to me. Let’s celebrate with free books! Download the award-winning Wide Awake and Dreaming: A Memoir of Narcolepsy e-Book for FREE on Sept. 14-15, 2013. When: Saturday…
Read MoreNo Longer Living in Silence – Guest Post by Jennifer Slodysko
When I learned about Julie’s NARCOLEPSY: NOT ALONE campaign, I realized that I had the perfect platform to help raise awareness. As a nursing student, I thought I could do a presentation about narcolepsy to my nursing class, and to ask for volunteers to take a campaign photo. My hope was that my classmates would carry…
Read MoreNARCOLEPSY: NOT ALONE Surpasses 500 Photo Goal!!!
A few weeks ago, I set a challenging goal for the NARCOLEPSY: NOT ALONE campaign – to collect 500 photos by Sept. 1st. Today is Sept. 1st and the gallery contains 576 photos from 46 U.S. States and 28 countries around the world! I could not have done this ALONE. Thank you for your love and support…
Read MoreCan We Reach 500 Photos by Sept 1st? Prize: Free E-Books for All!
We have almost 400 pictures in the NARCOLEPSY: NOT ALONE gallery! I am overwhelmed and thrilled by the amazing international response. Can we reach 500 by Sept. 1, 2013? *IF* we reach 500 by Sept 1 at 11:59 p.m., I will give away free e-books on the weekend of Sept 14 – 15, 2013, during…
Read MoreReflections on Narcolepsy: Guest Post by Tim Josiah Kavanagh
REM Runner’s Note: Tim created this unique photo for the NARCOLEPSY: NOT ALONE campaign. Read his amazing description below. Thank you, Tim! Tim’s Guest Post: Having narcolepsy can be confusing. Reality as experienced by a narcoleptic may often be distorted. Dream fragments live large in the mind and memories are unreliable. It can sometimes be…
Read MoreRandom Remmie Joins NARCOLEPSY: NOT ALONE Campaign Guest Post by Julie Barfuss
Meet “Random Remmie” – she’s had narcolepsy for as long as she can remember. She hates making her bed, she has a lot of pajamas, slippers, and a blue blanket. She’s really random. CLICK IMAGES TO VIEW SLIDESHOW: About the Artist: Julie Barfuss has lived in Utah her whole life. She doesn’t remember not being…
Read MoreMy Narcolepsy Angels: Guest Post by Racheal LeBrun
REM Runner’s Note: “What does the NARCOLEPSY: NOT ALONE campaign mean to you?” I’m inviting participants to write guest posts about their campaign experience. Thank you, Racheal for sharing your story! Guest Post by Racheal LeBrun: For me, at age 29, narcolepsy has been a very tough journey of struggling to live my life during…
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