narcolepsy memoir
Discovery Channel Narcolepsy Video
Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story. Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…
Read MoreWide Awake and Dreaming: A Memoir of Narcolepsy Hits Shelves
Mark your calendars! Wide Awake and Dreaming: A Memoir of Narcolepsy will be published and for sale on Saturday, December 15, 2012. Where to Purchase:The book will be for sale securely through my website and on Amazon.com (along with Amazon.co.uk, Amazon.de, Amazon.fr, Amazon.it, and Amazon.es). Wider distribution to follow! E-Book: Also on December 15, 2012, the e-book…
Read MoreWhen your book becomes a book…
If you set out to write a book, prepare to dig deep. For the longest of excruciating long times, you will be “in the process” and have little to show for it. For yourself. For your dream. Just one Word Doc that you keep re-naming with the new date as time rushes by. You will…
Read MoreMacy Gray Raises Narcolepsy Awareness
“Narcolepsy can be really damaging to your quality of life.” – Macy Gray Macy Gray recently spoke about narcolepsy in an in-depth interview with HuffPost Live. Macy stated that a close family member has struggled with narcolepsy for many years. “It’s very debilitating,” explained Macy Gray, a world-famous singer-songwriter, record producer and actress. Our narcolepsy wizard,…
Read MoreJulie Flygare’s Memoir Highlighted in Caring Voice Community Magazine
An excerpt from my upcoming narcolepsy memoir, “Wide Awake and Dreaming” is featured in Caring Voice Community Magazine’s Fall 2012 edition. Also, please check out my accompanying column, “Writing Therapy: How the act of writing can relieve the heaviest of burdens,” where I explore the challenges and benefits of writing about narcolepsy. I open the…
Read More“Sleepwalk With Me” Movie Raises Awareness about Sleep Disorders
“Sleepwalk With Me” is a must-see movie for everyone, especially the 40 million Americans challenged by sleep. The film features a struggling comedian, who is driving cross-country for low-end gigs, while managing a rocky relationship and odd incidents of acting out his dreams at night. I’m a big fan of Mike Birbiglia, the writer, director, and star…
Read MoreFive Years Living With Narcolepsy: What I Would Tell My Newly Diagnosed Self…
This week, five years ago, I was diagnosed with narcolepsy. My five year younger self was so scared and unsure how “narcolepsy” would fit in my life. It was so unwelcome. If I could go back and whisper in my younger ear, this is what I’d say: You will be okay. You are not alone. You will face…
Read MoreJoy for the Journey: Caring Voice Coalition’s Weekend Wellness Retreat
“Joy is not in things, it is in us.” -Richard Wagner This weekend, I attended Caring Voice Coalition(CVC)’s Weekend Wellness Retreat in Richmond, VA. The retreat’s theme, “Joy for the Journey” says it perfectly – it was a joyful and inspiring chapter in my journey. This past year, I read about my dear friend Trinity…
Read MoreI LIE A LOT in my Memoir: Untangling Lie, Lay, Lying, Laying, Lied, and Laid
I LIE A LOT in my memoir. Oh, not lying like fibbing. (Well, you can judge that later.) I mean, lying as in reclining. It’s a memoir of narcolepsy after all! I lie down and around so much in my narcolepsy memoir that I’ve called in grammar gurus to make sure I’m using the correct form…
Read MoreIsland Practice Book Raises Narcolepsy Awareness: Interview with Author Pam Belluck
Island Practice is the mesmerizing story of Dr. Tim Lepore, the only surgeon on Nantucket Island. Thirty miles off the coast of Massachusetts, Nantucket is known for its beaches, red pants, and sky-high real-estate prices. Author Pam Belluck reveals a different side of the island, a diverse year-round population with quirky medical problems and a doctor…
Read More