Narcolepsy Medications
2015 Reflections & Dreams for 2016 – Homer Simpson, Koalas and Marathons, Oh My!
Scariest Moment of 2015: I gave 12 presentations in 2015, but by far the most intimidating was my 5-minute ignite talk at Stanford Medicine X. My legs trembled stepping on stage in front of this prestigious group of healthcare innovators. I’d prepared for months, but still totally blanked mid-speech, making for a dramatic pause…….. But I did it and I’m…
Read More99 cents SALE – E-book of Wide Awake and Dreaming: A Memoir of Narcolepsy – LIMITED TIME
For one week, download Kindle version of Wide Awake and Dreaming: A Memoir of Narcolepsy for just $0.99. To inspire more readers this holiday season, I’ve discounted my e-book from $8.99 to $0.99. Please share or gift this to friends and family members. Together, we are building a brighter future for narcolepsy, and I’m so grateful for your support! Purchase…
Read MoreCelebrating 3 years of Wide Awake and Dreaming: A Memoir of Narcolepsy – An Honest Reflection
Writing for me is time-traveling. On January 16, 2012, I sipped a steaming hot soy latte at my favorite coffee shop in Arlington, Virginia, cued up the classical piano in my headphones and closed my eyes. Here we go! On this day, my time-traveling destination was a hotel room in Albany, New York – four years earlier. The subject…
Read MoreNARCOLEPSY: NOT ALONE in Vegas, baby!
“We dance for laughter, we dance for tears, we dance for madness, we dance for fears, we dance for hopes, we dance for screams, we are the dancers, we create the dreams.” Last night, we truly celebrated NARCOLEPSY: NOT ALONE with big smiles and pride in Las Vegas! Accompanied by award-winning neurologist and Ph.D. narcolepsy specialist…
Read MoreWATCH NOW: MedX 2015 Ignite! Talk by Narcolepsy Advocate, Julie Flygare
I’m thrilled to share my 5-minute Ignite! Talk from Stanford Medicine X 2015. Please share with friends and family to raise narcolepsy awareness (https://youtu.be/MXTd8xd_f8s). In this video, I describe my journey with narcolepsy from people laughing in my face to living proudly and creating the NARCOLEPSY: NOT ALONE campaign. I emphasize how feeling “misunderstood and alone” with…
Read MoreWhat I Said: Julie Flygare’s MedX Ignite Talk Transcript
REM Runner’s Note: On Sept. 24, 2015, I had the huge honor of stepping on the MedX main stage at Stanford Medical School to give an ePatient Ignite Talk. This is (more-or-less) what I said: ************ Diagnosed with narcolepsy at age 24, I was excited to tell my friends and family. Finally! I had legitimate medical terms…
Read MoreBehind the Scenes: Speaking at Stanford’s Medicine X Conference 2015
What would you say if you only had 5 minutes to speak? This question haunted me all year. See, some girls dream about their wedding day. Others dream about speaking at MedX. Or maybe that’s just me, but the main stage of Stanford’s Medicine X has been a dream of mine – the holy grail of…
Read MoreSyncopation – Dancing with Narcolepsy & Cataplexy Guest Post by Elaine Golden
REM Runner’s note: Recently, Elaine of Chica Siesta joined the NARCOLEPSY: NOT ALONE campaign. After reading her beautiful blog, I asked her to share in a guest post here. Please enjoy Elaine’s powerful and fresh voice. Read more at chicasiesta.wordpress.com. Syncopation – by Elaine Golden Recently, my friends and I went swing dancing at a jazz club…
Read MoreThe Simpsons Modifies Homer Narcolepsy Episode “Somewhat” After Reading Narcolepsy Article
When the Simpsons premieres tonight at 8pm ET/PT, Homer will get “narcolepsy”. I’m thrilled to report that Executive Producer, Al Jean tweeted me: “The episode was modified somewhat after I read the extremely compelling article you wrote. Not sure you will be 100% happy…” Thank you, Al Jean and the Simpsons for thoughtfully reading and modifying…
Read More8 Years Since Narcolepsy Diagnosis: No Longer “Suffering the Silence”
Living in Silence: Eight years ago today, on Sept. 18, 2007, I was diagnosed with narcolepsy with cataplexy, a serious chronic neurological disorder of the sleep/wake cycle. I told friends and family right away. Finally, I had scientific words to describe my mysterious symptoms. But I hated people’s reactions. Some acted as if I’d said…
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