Narcolepsy Event
Narcolepsy Lunch Break Webinar
Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD…
Read MoreOfficial NARCOLEPSY: NOT ALONE T-shirts!
The official NARCOLEPSY: NOT ALONE t-shirts are here! Raise awareness about narcolepsy while also supporting a good cause. Proceeds support Project Sleep, my new non-profit raising awareness about sleep health and sleep disorders. Purchase by Jan. 26, 2014. View/Order T-Shirts – Available in three styles: men’s/unisex, women’s fit and youth sizes – ONLY for sale…
Read MoreIntroducing the Jack & Julie Narcolepsy Scholarship
Today, I’m thrilled to unveil the Jack & Julie Narcolepsy Scholarship, the first-ever scholarship supporting students with narcolepsy while also raising awareness about narcolepsy in high school and collegiate settings. Beginning in 2014, one scholarship of $1,000 will be awarded to a high school senior who plans to attend a four-year university and exemplifies courage and…
Read MoreNARCOLEPSY: NOT ALONE Worldwide Update & Inviting My Hero, Ellen DeGeneres to Join Us!
Five months ago today, I launched the NARCOLEPSY: NOT ALONE campaign. I’m so excited to share this worldwide video update: Creating this video brought tears to my eyes – we had to stop filming momentarily so I could regain my composure. Thank you for standing tall and proud with me – helping to prove that…
Read MoreProject Sleep Scentsy Fundraiser
Holiday shopping for a good cause – I’m so excited to announce the Project Sleep Scentsy Fundraiser!! PROJECT SLEEP is a new non-profit organization founded by yours truly, Julie Flygare. The core mission of PROJECT SLEEP is to educate people about sleep health and sleep disorders. Lelia Phillips is an Independent Scentsy Consultant who also…
Read MoreSpeaking at FIU Medical School
On Monday, October 21, I had the honor of presenting at FIU Medical School to first and second year med students. I shared my journey with narcolepsy – from the mysterious beginning symptoms to diagnosis and treatment. I explained my transformation from hating narcolepsy to becoming a leading narcolepsy advocate – raising my voice up…
Read MoreNarcolepsy Network Conference 2013
On Oct. 18 – 20, I attended the Annual Narcolepsy Network Conference in Atlanta, GA, where I led four sessions along with selling and signing books. It was a whirlwind weekend – catching up with old friends and meeting new friends. The conference had a fantastic line-up of narcolepsy researchers and clinicians. These doctors were…
Read MoreJoin Me! Narcolepsy Twitter Chat on 10/31/13
This Thursday, Oct. 31, 2013 at 11:45 a.m. ET, join me for an exciting Narcolepsy Twitter Chat with narcolepsy medical experts and patient advocate leaders. Use Hashtag #Nchat or follow along on TweetChat here. Co-leaders include The Global Genes Project (@GlobalGenes), Dr. Shelby Harris of Montefiore Medical Center (@MontefioreNYC), Julie Flygare, JD (@REMRunner) and Wake Up Narcolepsy (@WakeNarcolepsy). Beginning at…
Read MoreNarcolepsy Network Conference 2013 – See you in Georgia!
This weekend, I will be speaking and signing books at the 28th Annual Narcolepsy Network Conference in Atlanta, GA. This is always an exciting weekend for me – as I get to see old friends and meet many new friends! Books: I’m offering a discount conference rate on personalized signed copies of Wide Awake and…
Read MoreOver 140 People at Narcolepsy UK Conference 2013 Say NARCOLEPSY: NOT ALONE
Guest post by Narcolepsy UK: Narcolepsy UK held its latest conference in Watford, just outside London, on Saturday, Sept. 14, 2013 and it was a great success. Our speakers were Dr Cathy Hill, a specialist in sleep disorders in children, the Medical Detection Dogs charity, fiction author Sue Moorcroft and her research into creating a…
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