Medication
Join me: Urge FDA to include Narcolepsy in new patient-focused initiative
The Food and Drug Administration (FDA) has nominated “narcolepsy” for a groundbreaking new patient-focused drug development initiative. Only 20 diseases will be chosen. Please join me in urging the FDA to select “narcolepsy” for this important effort. About the FDA Initiative:“Narcolepsy” is one of 39 disease areas nominated for a new FDA initiative to better inform the FDA’s drug and…
Read MoreDon’t Mess With My Sleep: Makenna’s Walk for Narcolepsy Research
At age five, Makenna was a healthy bright child in Kindergarten, with a great sense of humor and a charming magnetic personality. Under the Weather:In February 2011, Makenna came down with pneumonia. She was very sick and admitted to the Children’s Hospital for IV Antibiotics. She recovered from the infection, but never got her strength…
Read MoreThings I love: Sara Gorman’s Pillbags
At my brother’s wedding recently, one of my orange pill bottles mistakenly opened in my purse. Later, I found crushed pills at the bottom of my purse. Major bummer. Handling medications is never graceful, or is it? Soon thereafter, I came across Sara Gorman’s Pillbags! Sara is a friend, role model, lupus advocate, and the…
Read MoreRoanoke Valley Awakens to Narcolepsy
Mother Diantha with daughters Haven and Seanna On the last day of school, when a 4th grader passed a hat around the classroom, no one blinked. Instead, each 4th grader reached into their pockets and gave what they had – mostly coins. Together, they proudly collected about $15, believing that small change could lead…
Read MoreInsomnia Drug Develops from Narcolepsy Research
What do people with insomnia and people with narcolepsy have in common? Trick question! I don’t know, but we may be coming closer to an answer. In the late 90’s, narcolepsy researchers made a significant breakthrough in successfully identifying the brain cells, called hypocretin (or orexin), that go missing in those that develop narcolepsy. These…
Read MoreWhy Not Today.
I was looking forward to my 3 mile run today, as these shorter runs have become a comforting and stress-relieving part of my winter routine. However, I’ve decided that it’s best that I don’t run today. Hopefully I’ll be able to get this run in tomorrow, so it’s really not the end of the world. None-the-less,…
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