Medication
Narcolepsy Featured in The Pink Sheet Publication
I’m excited to share, “Narcolepsy Patients Hope FDA Attention Will Spur Drug Research, Shed Misperceptions” by Brenda Sandburg, The Pink Sheet, May 13, 2013. [View/Download PDF] This great article describes narcolepsy’s inclusion in FDA’s Patient Focused Drug Development Iniative. Thank you Ms. Sandburg and the Pink Sheet for featuring narcolepsy in your publication! For more posts about…
Read MoreNarcolepsy Awareness Video #15: Narcolepsy Chosen for FDA Initiative
I’m thrilled to release my 15th narcolepsy awareness video providing an update on narcolepsy’s placement in FDA’s Patient Focused Drug Development Initiative (PDFFI). For more posts about the FDA Initiative, click here. Thank you for checking out my video! Big thanks to Alex Withrow for his expert video production. Watch full video series Watch Video #19:…
Read MoreJulie Flygare Featured on Dr. Don Show
On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr.…
Read MoreDr. Mignot Discusses Current State of Narcolepsy Research with NIH’s Dr. Twery
Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness! Thank you Dr. Twery, Dr. Mignot and NHLBI…
Read MoreWatch Video: TV Narcolepsy Interview with Julie Flygare on Forward Motion with Karen Allyn
Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
Read MoreJulie Flygare’s Interview on Sirius XM Radio – Listen Here!
Listen here for my SiriusXM Radio’s Broadminded Show interview. This morning, I arrived at the SiriusXM Radio studios at sun-rise. It was great to see the Broads again, Christine and Molly. We talked about my book, love life, National Sleep Awareness Week and the National Sleep Walk! I hope you enjoy the segment. Thank you for…
Read MoreUnderstanding Pediatric Off-Label Drug Use and Insurance Coverage
Among challenges facing people with narcolepsy, securing health insurance to cover expensive medications can be a source of anxiety and fear. My personal experience with health insurance has been a roller-coaster but ultimately, I am thankful to have decent coverage now (knock on wood). However, I’ve heard multiple stories recently (in news articles, at conferences and…
Read MoreHow Do I Handle My Narcolepsy Diagnosis? Julie Flygare Narcolepsy Awareness Video 6
A reader asked me, “How do I handle my recent narcolepsy diagnosis?” I address this question here, in my 6th narcolepsy awareness video. Watch below (in 1080 HD for best quality) or on YouTube. Thank you for watching! More videos coming soon. Many thanks to Alex Withrow for his amazing video production. You made me glow…
Read MoreDiscovery Channel Narcolepsy Video
Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story. Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…
Read MoreNarcolepsy on Discovery Channel Featuring Julie Flygare
This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST). It was an honor to work…
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