Inspirational Quotes
Jumping Into a New Chapter of My Journey
Hi friends! I’m so beyond excited to share that as of February 12, 2018, I made a huge career change and took on a new role as President & Chief Executive Officer (CEO) of Project Sleep! Read the full announcement here. Wait, what’s the difference? Some people have said they thought I was already serving in this…
Read MoreHow to Become a Narcolepsy Advocate? Apply Today for Rising Voices of Narcolepsy – Deadline Approaching
We all have a story to tell. Let’s get busy telling yours! I’m so excited to share the news that Project Sleep is now accepting applications for the Rising Voices of Narcolepsy leadership training program. However, the application deadline is quickly approaching in 9 days on February 24th, 2017 at 5:00pm PST, so please view summer 2017…
Read MoreHappy Rare Disease Day 2016!
Today, February 29 is Rare Disease Day! With 350 million people around the world living with a rare disease, HUG someone with a RARE DISEASE today. For Rare Disease Day 2016, I was SO honored to contribute to two great articles for Mashable’s Social Good program. Author, Katie Dupere eloquently describes: “For those living with rare…
Read MoreWATCH NOW: MedX 2015 Ignite! Talk by Narcolepsy Advocate, Julie Flygare
I’m thrilled to share my 5-minute Ignite! Talk from Stanford Medicine X 2015. Please share with friends and family to raise narcolepsy awareness (https://youtu.be/MXTd8xd_f8s). In this video, I describe my journey with narcolepsy from people laughing in my face to living proudly and creating the NARCOLEPSY: NOT ALONE campaign. I emphasize how feeling “misunderstood and alone” with…
Read MoreYOU CAN AND YOU WILL (Marathon Part II)
As I crossed the start line of the San Diego Rock n Roll Marathon, runners started passing me. I laughed when a pack of Elvis(s) passed me. Typical. “Slow and steady. No one to beat. Nothing to prove,” I told myself. My shirt was drenched with sweat within 3 miles. Soon my hands raisined and…
Read MoreNARCOLEPSY: NOT ALONE Reaches Everest Base Camp
Please welcome GRACE to the NARCOLEPSY: NOT ALONE campaign, who took this photo at the Everest Base Camp in Nepal. In her inspiring blog post, she describes her journey as a woman with narcolepsy with cataplexy to reach the Everest Base Camp: “On paper you might think that a person with a diagnosis of Narcolepsy attempting to trek to…
Read MoreFive Key Phrases for Health Advocates
Living with a chronic or invisible illness like narcolepsy can be confusing and overwhelming. Here are the key phrases that have helped me survive and thrive in critical moments when I needed to advocate for myself and my health. I suggest adding these phrases to your vocabulary asap. #5. “Is there someone else I can speak with?”I…
Read MoreTop 13 Inspirational Quotes of 2014 – #1 No Expiration Date
“Your dream doesn’t have an expiration date.Take a deep breath and try again.”-KT Witten About a year ago, one of my best friends, Gail added this quote (IN ALL CAPS) to her email signature. I smiled cause I love inspirational quotes. But then something odd happened – over the past year, I watched Gail make…
Read MoreTop 13 Inspirational Quotes of 2014 – #2 No Hope
“Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.” -Dale Carnegie For years, my book was a long-shot in the dark. I worked toward this goal without knowing if/when I would “succeed”. I faced skepticism and unforeseen…
Read MoreTop 13 Inspirational Quotes #3 – No Feeling is Final
“Let everything happen to you.Beauty and terror.Just keep going.No feeling is final.”-Rainer Maria Rilke No feeling is final. Sleepiness, wakefulness, happiness, sadness. We are constantly shifting. This gives me solace to get through the hard times. Inspirational Quote #4: Inspirational Quote #5: Inspirational Quote #6: Inspirational Quote #7: Inspirational Quote #8: …
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